Volunteer with SB&H! We Need You!

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SB&H is very grateful to those individuals who give of themselves and contribute to the success of the Association. Volunteers are the foundation of our organization. We rely on volunteers to provide governance and leadership, to deliver programs and services, raise funds and awareness.

We know that your unique talents, skills and knowledge can help us to achieve our mission to improve the quality of life for individuals with hydrocephalus and spina bifida and their families.

Volunteer Opportunities within your Community include:

Parent Link
Adult Link
Youth Link
Awareness Display Attendant
Community Awareness Distributor
Support Group Organizer for Adults living with sbh
Support Group Organizer for Parents/Caregivers
Social Event Organizer
Community Contact
Lottery Calendar Seller
Bingo Event Assistant
Coin Box Program Representative

If you are interested in volunteering for any of the above activities, please complete and return the SB&H Volunteer Application form and email form to provincial@sbhao.on.ca or mail form to SB&H, 555 Richmond Street West, Suite 1006, PO Box 103, Toronto, ON   M5V 3B1.  Please include your resume with application form.  For additional information about volunteering for SB&H contact us at 800-387-1575

Whether you have an hour or it's your life’s ambition to volunteer, we have an activity for you!!!

Discover the rewards of helping others! 


Thank you to each and every one of our volunteers! We couldn't do it without your help.

Special Recognition Volunteer Awards

The following people were recognized with 2013/14 SB&H Special Recognition Awards at our Annual General Meeting on September 27, 2014 for service above and beyond what we asked.


The Honorable Mr. Justice Marc Garson 

In 1997, Mr. Justice Marc Garson, made a pledge to his daughter as she was wheeled into the O.R. for her first shunt surgery that, “ he would do everything in his power to make things better for her in the future.”

The journey to deliver on that pledge led Marc to SB&H. He began volunteering in 1999 as a parent link and became intrigued by the opportunities and challenges facing the Association. Marc joined the SB&H Board of Directors, first serving as Vice Chair and then Chair of the Board from 2007 to 2013.  His impact was immediate, spearheading the move to a governance style Board and bringing together world renowned neurosurgeons and health care specialists on hydrocephalus and spina bifida, to form the SB&H Medical Advisory Board. He has been instrumental in coordinating efforts in Ontario, across Canada and the US to drive advancements in research, technology and care. A tireless advocate and champion for the cause, he is personally responsible for bringing well over $100,000. support to SB&H, an incredible accomplishment. Through his vision and leadership, great strides have been made in elevating the profile of the conditions and the Association. Those of you who have attended past AGM’s can attest to his dedication to SB&H’s mission and his wit and humour!  Marc is driven by the desire to improve quality of life of everyone affected by these conditions and to deliver on that promise to his daughter.

John Maclachlan

Mr. Maclachlan was motivated to volunteer as an SB&H Board member after his daughter was diagnosed with hydrocephalus. He served in various positions on the Board of Directors from 2005 until 2011. Mr. Maclachlan felt that the board’s goals were in line with his ambitions of helping other families in similar situations. John remains an active supporter of SB&H. He continues to be instrumental in securing sponsorships, sizeable donations and garnering support for the Association. To date, these efforts total an astounding $100,000. We are honouring Mr. Maclachlan today for his dedication and generous service to the Board of Directors and his outstanding achievements in support of the Association and those affected by the conditions. 



Our members contribute tremendously to the mission of SB&H in many ways.  Some volunteer by organizing support groups and social events, others work bingo events, sell lottery calendars, organize third party and Spirit Wheel Walk Run events across the province. These activities engage those living with the conditions in their communities, increase awareness of sb/h, generate community support and raise much needed funds for our programs and services.  We would like to take this opportunity to acknowledge a few of these individuals for their outstanding achievements and who have consistently shown their spirit and passion for the Association. 

Troy & Annette Chandler

As an adult living with hydrocephalus in Sault Ste. Marie, Troy wanted to connect with those in a similar situation.  His wife, Annette created a website about his experiences and they connected with SB&H.  They readily volunteered and became the community contacts for the region. We have featured their story in Current magazine and on our website. Since 2012, the Chandler’s have raised the profile of hydrocephalus and spina bifida in their northern Ontario community by selling lottery calendars and organizing an annual Spirit Wheel Walk Run event called Troy’s Trail. The walks have garnered the attention of the media, raising the profile of the conditions and the Association.  To date, Troy’s Trail has raised over $5,000. This couple’s commitment to each other is inspiring and their commitment to supporting families living with hydrocephalus and spina bifida is the reason we are honouring Troy and Annette today with our Citation of Merit award. 


Jennifer Chappell

Jennifer reached out to SB&H shortly after her twins Sophie & Joshua were born in 2011. Sophie was diagnosed at birth with hydrocephalus and Joshua a year later. Jennifer wanted to connect with other parents in her community and with the help of another SB&H member they organized a support group for families living with the conditions in the Durham & Kawartha regions. In 2012, Jennifer & her husband Scott shared their story with SB&H which was published in Current magazine and used as our Christmas donor appeal. The campaign generated over $2,200. for our programs and services. Jennifer and Sophie have also raised awareness of hydrocephalus through Sophie’s participation in the Little Darling Divas Pageant. Jennifer was instrumental in ensuring that a portion of the proceeds from the pageant where donated to SB&H. We are pleased to present Ms. Chappell with a token of our appreciation for her outstanding volunteer efforts on behalf of the Association. 


Megan Male

Ms. Male found out about SB&H in 2011, when she met our Youth Ambassador, Danny Lamb.  Diagnosed with hydrocephalus as a young adult, Megan contacted the Association to inquire about support groups and connecting with others living with the condition in the Niagara region. Ms. Male volunteered to help SB&H form a Niagara support group for adults living with spina bifida and hydrocephalus.  This led to a connection with another SB&H member Judy Feeley.  Through their efforts the SB&H Niagara Adult Support Group was formed. Megan also organized her first Spirit Wheel Walk Run event in 2011, called Helping Hands for H & SB.  Her walk now involves the support group and their team named the “Spinal Tappers”. These events have raised over $9,800. since their inception. We congratulate Megan for her initiative and excellent efforts to raise awareness and funds for the Association and her dedication to supporting others living with the conditions.


Judy Feeley

Ms. Feeley contacted SB&H in 2011 when she was diagnosed with hydrocephalus and wanted to help the Association in any way she could. Judy volunteers her time selling lottery calendars and has come up with creative ideas to raise awareness and funds for SB&H in her community. She is part of the Spinal Tappers Spirit Wheel Walk Run team in the Niagara region.  As mentioned, Ms. Feeley and Ms. Male also spearheaded an adult support and social group for those living with the conditions in community. The group meets monthly to share their experiences and provide each other with guidance and friendship. We commend Judy for her commitment and outstanding efforts to raise awareness and funds for the Association and her dedication to supporting others living with the conditions. 


Chelsea Riley & Laura Harris

Raising children with hydrocephalus, spurred Ms. Riley & Ms. Harris into action. In 2012, Chelsea and Laura contacted SB&H as they wanted to raise awareness of hydrocephalus in their Burlington & Hamilton communities. Together they created a Spirit Wheel Walk Run called Ryder & Andrew’s Journey. The event at Confederation Park in Hamilton included, a walk, bbq, silent auction and face painting. There were over 100 registrants and a whopping $14,800. was raised for SB&H. Their passion to highlight the need for hydrocephalus research was extraordinary and a phenomenal success. Both families were featured in the Hamilton Spectator and Flamborough Review newspapers. We would like to take this opportunity to thank Ms. Riley and Ms. Harris for their outstanding spirit and commitment to the Association.


Amberly Wouda

Ms. Wouda and her daughter Claire were introduced to SB&H at the spina bifida clinic in Toronto. Amberly was keen to get involved with the Association and decided to create a Spirit Wheel Walk Run event in the Huntsville area. In 2013, Claire’s Cause walk and bbq was featured in the local newspaper, the Huntsville Forester. The event had over 30 participants and elevated the profile of spina bifida and hydrocephalus in the community. Over $2,300 was raised for SB&H programs and services. The Wouda’s also shared their story with SB&H which was published in Current magazine and used as our Christmas donor appeal, generating over $8,500. Amberly & Claire are pictured on the 2013-14 Annual Report cover that are in your packages today. We are pleased to present Ms. Wouda with a token of our appreciation for her exceptional volunteer efforts on behalf of the Association.



2012-13 Special Recognition Award Recipients

Jennifer Fraser Lindsay, Ontario was the setting for the first “Quinn’s Journey” Spirit Wheel Walk Run. Family and friends walked 5.8 km to raise awareness of hydrocephalus. The local paper published a story about Quinn, Jennifer’s son and covered the event.  In 2012, the Fraser family took “Quinn’s Journey” to a whole new level. They hosted a Celebrity Server Night at Boston Pizza, held a silent auction and bbq and had over 100 people participate in the walk, generating a whopping $10,600. We commend Jennifer for her commitment and outstanding efforts on behalf of the Association.


Tammy Trimble – For the past five years, Tammy has organized the Jackson’s Hope FORE Hydrocephalus golf tournament, named for her sports-loving son Jackson. This annual event that supports SB& H research and awareness of hydrocephalus has generated over $7,000.


Tanya Fortier – Tanya has been a member of SB&H since 2001 and has been a dedicated volunteer ever since.  She has been the SB&H voice in the Kitchener/Waterloo region, providing support to families as the SB&H community contact.  Tanya is particularly interested in ensuring that women in her community receive the important information about the benefits of folic acid in the prevention of neural tube defects.  She has spread this message by being our representative at community pre-natal fairs providing SB&H folic acid education and awareness materials, Tanya continues to contribute to the Association by selling our lottery calendar and with her daughter Rylie they raise awareness about the conditions through their Spirit Wheel Walk Run events. 


Janice Beauchamp – June is a special month for the Beauchamp family of Amherstburg. They celebrate their daughter Emily’s birthday and raise awareness and funds for SB&H through their annual SWWR-Emily’s Walk.  Some of their SWWR activities to raise funds include a yard sale, lemonade stand and bake sale. Their SWWR has also been featured several times in their local newspaper raising awareness of both conditions.  Emily’s Walk grows each year and to date has raised over $1,000.


Pat McGrade – Pat does an outstanding job raising funds for the Association and increasing awareness of the conditions through our 100 Hole Charity Golf Challenge. Pat is a Detective with 22 Division in Toronto, and in 2012 he organized a fundraiser for the challenge, becoming a “dunkee” in the Dunk the Detective...Sink the Sarge...Swamp the Superintendant Fundraiser.  This unique event was even featured on a Toronto newscast.  Pat and his son Ryan have participated in the Golf Challenge since 2010, raising over $4,000 for SB&H.  Pat holds the record for playing the most holes at 205! We are very grateful to Pat for for his support and commitment to the Association.


Colleen & Barb Siddall – Wanting to raise awareness of spina bifida and hydrocephalus, a condition her daughter Payton was born with, Colleen started to organize her first Spirit Wheel Walk Run and proud grandma Barb was eager to help.  The Siddall’s were joined by family and friends in the small southwestern village of Wheatley, Ontario where they held their banner high at the four corners to raise awareness of the conditions.  In 2012, the event location was moved to the Lake Erie shore, where 100 people participated in the SWWR lead by Payton and the town fire engine.  Participants enjoyed a bbq and raffle raising over $7,000 for SB&H.


Rob Terry – For the past 3 years, Rob and his daughter Danielle have participated in our golf challenge and have raised over $4,600 for SB&H. The Terry family has also donated sports memorabilia annually for the live auction.  At this year’s event, Rob outdid himself by playing 130 holes. We are very grateful to Rob for his continued support and all that he does for the Association.


Berkley Francis – In 2012, Berkley Francis with the help of her family organized her first SWWR event Berkley’s Battle for Hydrocephalus Awareness.  Over 75 friends and family came out to Greenway Park to walk, jog, stroll or cycle in London, Ontario. The London Community News covered and published a story about the event.  Berkley also created a video that educated the viewers and documents her story of living with hydrocephalus. The video was featured on the SB&H website and YouTube .To date Berkley’s Battle has raised over $4,000.


Wanda Cole – Wanda began volunteering for SB&H in July of 2012 and has been a reliable, hardworking addition at the Association’s office.  She contributes much needed administrative assistance to the staff in the areas of programs, services and fundraising and is eager to pitch in wherever it is needed.  She has given generously of her time one to two days a week for the past year.  We thank Wanda for her continued support of SB&H.