Useful Links
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Select from the following groups of links:
- Spina Bifida & Hydrocephalus
- Hydrocephalus
- Spina Bifida
- Disability & Support Group Organizations
- Animal Assisted Services
- Arnold Chiari
- Children's Treatment Centres
- Clothing
- Complimentary Medical & Alternative Therapy Options
- Community Service Agencies
- Education
- Employment Supports
- Estate Planning
- Fetal Diagnosis
- Folic Acid
- Funding Assistance
- Housing & Attendant Services
- Latex Allergy
- Legal Services
- Mobility & Daily Living Aids
- Neurology
- Parenting
- Procedures & Treatments
- Recreation
- Research
- Respite
- Syringomyelia
- Transition & Adult Services
-
Miscellany
- Spina Bifida & Hydrocephalus Association of Canada
- Spina Bifida & Hydrocephalus Association of British Columbia
- Spina Bifida & Hydrocephalus Association of Northern Alberta
- Spina Bifida & Hydrocephalus Association of Southern Alberta
- Spina Bifida and Hydrocephalus Association of Nova Scotia
- l'Association de Spina-Bifida et d'Hydrocéphalie du Québec
- Arbeitsgemeinschaft Spina bifida und Hydrocephalus e.V. - Germany
- Association for Spina Bifida and Hydrocephalus - United Kingdom
- Associazione Piemontese Spina Bifida e Idrocefalo - Italy
- International Federation for Hydrocephalus and Spina Bifida
- Spina Bifida Hydrocephalus Queensland
- Mid West Spina Bifida and Hydrocephalus Association
- Spina Bifida & Hydrocephalus of South Australia Inc.
- Spina Bifida Foundation Victoria, Australia
- Assoicacao de Hidrocefalia e Mielomeningocele de Ribeirao Preto - Brazil
- Spina Bifida & Hydrocephalus Support Group-Facebook
Hydrocephalus
- LifeNPH-Hope for People with Normal Pressure Hydrocephalus
- NPH_Friends
- Dandy Walker Syndrome
- Hydrocephalus Association - United States
- Hydrocephalus Clinical Research Network(HCRN)
- Hydrocephalus Information
- The Children's Hydrocephalus Support Group
- Maternal Hydrocephalus
- Hydrocephalus Fact Sheet - National Institute of Neurological Disorders and Stroke
- Patient Centres - Hydrocephalus
- Pediatric Hydrocephalus Foundation
-
National Hydrocephalus Foundation
Spina Bifida
- Spina Bifida Association of America
- Children with Spina Bifida: A Resource Page for Parents
- Colorado Spina Bifida Association
- Resources for People Interested in Spina Bifida & Related Disorders
- Scottish Spina Bifida Association
- Spina Bifida Association of Connecticut
- Spina Bifida Association of Washington State
- Spina Bifida Association of Greater New Orleans
- Spina Bifida Association of Kentucky
- Spina Bifida Central
- Spina Bifida Kids Blogspot
- Spina Bifida Connection
- Information site for Spina Bifida Community (US based)
Disability & Support Group Organizations
- Ability Online Support Network
- AboutFace
- AODA-Accessibility for Ontarians with Disabilities Act
- Anencephaly Support & Information
- Autism Ontario
- Autism Speaks Canada
- Canadian Continence Foundation
- Canadian Medic Alert Foundation
- Citizen Advocacy
- Citizens with Disabilities-Ontario
- Easter Seals Ontario
- Epilepsy Ontario
- Family Alliance Ontario
- Family Support & Resource Network Chatham-Kent
- National Organization of Disorders of the Corpus Callosum
- Neurological Health Charities Canada
- Opportunities for the Disabled Foundation
- Paralysis Resource Centre-Christopher & Dana Reeve Foundation
- Reach Canada-Equality & Justice for People with Disabilities
- Special Services at Home Provincial Coalition
- Spinal Cord Injury Ontario
- Waterloo Region Family Network
Animal Assisted Services
- Canadian Foundation for Animal-Assisted Support Services
- Canadian Registry of Therapy Animals and Service Animals
- COPE Service Dogs
- Encouraging Paws Service Dogs
- Golden Opportunity Assistance Dogs
- Lions Foundation of Canada - Dog Guides
- National Service Dogs Training Centre Inc.
- Thames Centre Service Dogs
Arnold Chiari
- Chiari Malformation Information - National Institute of Neurological Disorders & Stroke (US)
- Chiari EGroup
- Chiari Kids EGroup
- World Arnold Chiari Malformation Association
Children's Treatment Centres
- Ontario Association of Children's Rehabilitation Services-Children's Treatment Centres
- Belleville-Quinte Children's Treatment Centre
- Brantford-Lansdowne Children's Treatment Centre
- Children's Treatment Centre of Chatham-Kent
- Halton/Peel-Erinoak, Serving Young People with Physical Disabilities
- Hamilton-Developmental Paediatrics & Rehabilitation-McMaster Children's Hospital
- Kingston-Child Development Centre-Hotel Dieu Hospital
- London-Thames Valley Children's Centre
- North Bay-One Kids Place Children's Treatment Centre
- Oshawa-Grandview Children's Treatment Centre
- Ottawa Children's Treatment Centre
- Peterborough-Five Counties Children's Centre
- St. Catharines-Niagara Peninsula Children's Centre
- Sarnia-Pathways Health Centre for Children
- Sault Ste. Marie-Children's Rehabilitation Centre Algoma
- Simcoe York-Children's Treatment Network
- Sudbury-Children's Treatment Centre Health Sciences North
- Timmins-Cochrane Temiskaming Children's Treatment Centre
- Thunder Bay-George Jeffrey Children's Treatment Centre
- Toronto-Holland Bloorview Children's Rehabilitation Hospital
- Waterloo-KidsAbility Centre for Child Development
- Windsor-John McGivney Children's Centre
Clothing
- Epiphany Design - Functional Outerwear
- TheraFleece WoodHoodz Wear
- Kymotion Clothing Designs
- Comfortable Allergy-free Clothing
- Izzy Camelieri Adapted Clothing Boutique
- Koolway Sports Designs
- Bee's Knees for High-Performance Crawling
- Resolve Apparel
Complimentary Medical & Alternative Therapy Options
- Acupuncture Foundation of Canada Institute
- Bodiworks Centre for Specialized Wellness
- Family First Play Therapy Centre Inc.
- Hand Skills for Children Occupational Therapy
- Jackson Therapeutic Recreation
- MedBroadcast
- Ontario Chiropractic Association
- Ontario Society of Chiropodists
- Ontario Association of Naturopathic Doctors
- Penny Doncaster Occupational Therapy Services
- Registered Massage Therapists' Association of Ontario
- Shiatsu Society of Ontario
Community Service Agencies
- Abilities.ca
- Accessibility Directorate of Ontario & Accessibility Ontario
- Active Living Alliance for Canadians with a Disability
- Child Development Resource Connection Peel
- Community Information 211Toronto
- Community Living Ontario
- Eastern Ottawa Resource Centre
- Essex County Disability Awareness Forum
- Extend-A-Family-Hamilton
- Extend-a-Family -Kitchener
- Extend-A-Family-Toronto
- Family Info London-Middlesex Region
- Family Respite Services Ontario
- Health Canada-People with Disabilities
- Hellenic Hope Centre for Persons with Special Needs
- InformOntario-Association of Community Information Centres
- Kids Help Phone
- Parent Guide Online Directory for Ontario
- Persons with Disabilities On-Line
- St. Bernadettes Family Resource Centre
- South West Healthline & Information London/Middlesex
- TASH
- Tetra Society of Ontario
- The In Community-Ottawa
- Women's Health Matters-Sunnybrook & Women's College Health Sciences Centre
- YMCA/YWCA's in Ontario
Education
- Angus Lloyd & Associates-Educational Consultants
- Epilepsy Classroom-Hospital for Sick Children
- Free Student Tutor Networking Resource
- Holland Bloorview Family Resource Centre - School
- Individual Education Plans-Sample
- Individual Education Plan (IEP) Resource Guide
- Individual Education Plans-What You Need to Know About
- Integra-Improving the lives of Children & Youth living with Learning Disabilities
- Learning Disabilities Association of Canada
- Learning Disabilities Association of Ontario
- Ministry of Education-Parents Reaching Out Grants
- National Educational Association of Disabled Students (NEADS)
- Ontario Association of Education Advocates
- Precious Minds-Providing support to families with children who have barriers to learning.
- Project Work
- School Advocacy Hamilton (for parents of special education pupils)
- School Health Support Services-Community Care Access Centre
- Silvercreek Preschool
- SNOW-Special Needs Opportunity Windows
- Student Awards (Scholarships, Grants and Financial Assistance)
Employment Supports
- Abilities.ca
- Altis HR Recruiting Solutions
- Canadian Council on Rehabilitation & Work-Workplace Essential Skills Partnership (WESP)
- Employ-Ability Program-Durham Region Employment Network
- Employ-Ability Program-Neil Squire Society-Eastern Ontario
- Employment Access-Coalition for Persons with Disabilities-Mississauga
- Employment Equity-Human Resources & Skills Development Canada
- Employment Services-March of Dimes
- Employment Services-Spinal Cord Injury Ontario
- Employment Supports-Ontario Disability Support Program
- JVS Toronto
- JOIN-The Job Opportunities Information Network
- LEADS-Employment Services London for People with Disabilities and/or Barriers
- Link Up Employment Services for Persons with Disabilities
- National Education Association of Disabled Students Online Work System
- Niche Network-Workopolis On-line Job Board
- Opportunities Fund for Persons with Disabilities
- Ready, Willing & Able Employment Support-Family Services of Peel
- The Business Education College-Halton/Peel
- Workink Canada-Virtual Employment Resource Centre by
- YMCA Employment Services
Estate Planning
- Bearing Capital Partners Estate Planning
- Estate Planning for Individuals with Disabilities Info Sheet
- Law Office of Kenneth C. Pope-Henson Trust Specialists
- LifeTrust Planning
- Planned Lifetime Advocacy Network
- Registered Disability Savings Plan (RDSP) - Human Resources & Skills Development Canada
- Special Needs Planning Group
- Windsor Essex Brokerage for Personal Supports
Fetal Diagnosis
- Center for Fetal Diagnosis and Treatment at Children's Hospital of Philadelphia
- Fetal Surgery for Spina Bifida Diagnosis at Fetal Care Center of Cincinnati Children's Hospital
- Fetal Surgery for Spina Bifida Diagnosis at Children's Memorial Hermann Hospital Texas Fetal Center
- Fetal Surgery for Spina Bifida Diagnosis at Children's Hospital at Vanderbilt
- Fetal Surgery for Spina Bifida Diagnosis at UCSF Fetal Treatment Center
- MOMS-Management of Myelomeningocele Study of Prenatal & Postnatal Surgery for Spina Bifida
- Motherisk-Hospital for Sick Children, Toronto
Folic Acid
- Folic Acid Alliance Ontario
- Folic Acid-Publicy Health Agency of Canada
- Folic Acid Awareness-FDA
- Folic Acid-Centers for Disease Control & Prevention
- Folic Acid Fortification-US Food and Drug Administration
- Folic Acid Fertility Information for Women & Men
- Joint SOGC-Motherisk Clinical Practice Guideline on the use of folic acid
- Motherisk
- Periconceptional Use of Folic Acid to Reduce Risk of Neural Tube Defects
Funding Assistance
- A Child's Voice Foundation
- Access 2 Entertainment Card
- Assistance for Children with Severe Disabilities - Ministry of Children & Youth Services
- Assistive Devices Program-Ministry of Health & Long-Term Care
- Canada Benefits Finder Service On-Line -Government of Canada
- Canada Student Loans Program-Permanent Disability Benefit
- Canada Study & Canada Access Grants Accommodation for Students with Permanent Disabilities
- Child-Care and Caregiver Deductions - Canada Revenue Agency
- Canada Pension Plan Disability Benefits (CPPD) - Human Resources & Skills Development Canada
- Canada Pension Plan Children's Benefit - Service Canada
- Child Disability Benefit-Canada Revenue Agency
- Disability Awards for Students with Disabilities
- Disability Supports Deduction - Canada Revenue Agency
- Disability Tax Credit Information -Canada Revenue Agency
- Disability Tax Credit/Medical Expense & Attendant Care Expense Deduction - Canada Revenue Agency
- Disability Travel Card
- Direct Funding Program -Centre for Independent Living Toronto
- Easter Seals Direct Financial Assistance
- Enhanced Respite Funding
- Family Support Fund-Holland Bloorview Family Resource Centre
- Financial Assistance Program-Precious Minds
- GST/HST Specially-Equipped Motor Vehicle Rebate - Canada Revenue Agency
- Home & Vehicle Modification Program - March of Dimes
- Homeowner Residential Rehabilitation Assistance Program (RRAP)
- Incontinence Supplies Grant Program Children 0-18 years - Easter Seals Ontario
- Individualized Funding Coalition Ontario
- Mandatory Special Necessities (MSN) - Ontario Disability Support Program
- Meal & Travel Expenses for Medical Treatment - Canada Revenue Agency
- Northern Health Travel Grant Program
- Ontario Disability Support Program (ODSP) - Ministry of Community and Social Services
- Ontario Early Years Healthy Babies Children Program
- Ontario Public Drug Programs
- Ontario Recreation Funding - Holland Bloorview Family Resource Centre
- President's Choice Children's Charity
- Registered Disability Savings Plan
- Special Services at Home Program (SSAH) - Ministry of Children & Youth Services
- Passport Program Transition to Adult Services & Supports - Ministry of Community & Social Services
- Trillium Drug Program - Ministry of Health & Long-Term Care
Housing & Attendant Services
- Access Independent Living Services
- Assisted Living Services in Supportive Housing - Ministry of Health & Long-Term Care
- Assisted Living Southwestern Ontario
- Attendant Services - March of Dimes
- Attendant Services - Spinal Cord Injury Ontario
- Barrier Free Architecturals Inc.
- Bellwoods Centres
- Breaking Down Barriers - Independent Living Resource Centre Collingwood
- Carefect Home Care Services
- Centre for Independent Living Toronto (CILT)
- Clarendon Assisted Living Services for Persons with a Disability
- Community Living Ontario
- Disability Resource Centre for Independent Living Kapuskasing
- Gage Transition to Independent Living
- Independent Living Canada
- Independent Living Centre Kingston
- Independent Living Centre London & Area
- Independent Living Sudbury Manitoulin
- Independent Living Resource Centre Thunder Bay
- Independent Living Centre of Waterloo Region
- Niagara Centre for Independent Living
- North Yorkers for Disabled Persons
- Nucleus Independent Living
- Ottawa Independent Living Resource Centre
- PACE Independent Living
- Participation House - Waterloo Region
- Participation House Support Services - London & Area
- Participation Lodge
- Premier Homecare Services
- RISE-Resource Centre for Independent Living Parry Sound
- Saint Elizabeth Health Care
- Tobias House-Attendant Care
Latex Allergy
- Latex Allergy Links
- American Latex Allergy Association
- Canadian Allergy, Asthma and Immunology Foundation
- Article on Latex and Toys
- Latex Allergy Support Group
- Natural Rubber Latex (NRL) Allergy discussion online
- Allergy Safe Communities
- Anaphylaxis Canada
Legal Services
- ARCH-Disability Law Centre
- Sommers & Roth Barristers & Solicitors
- Legal Help Ontario
- Pro bono Law Ontario-Specializing in Education Matters
- Justice Net Legal Information
- Social Justice Tribunals Ontario
-
Your Legal Rights
Mobility & Daily Living Aids
- Advocare
- AMS Vans
- Freedex Bikes
- Invacare
- Motion Group
- O.O.S. Medical
- Parsons Accessories for Daily Living
- Pride Mobility
- Scoot Around - Rentals
- Stride Wheelchairs Plus
- Sunrise Medical
Neurology
- Montreal Neurological Institute
- Canadian Congress of Neurological Sciences
- National Institute of Neurological Disorders and Stroke
- Neurological Disorders in Children - Beth Israel Medical Center
- Pediatric Neurosurgery Home Page - Columbia University Medical Center
- American Association of Neurological Surgeons
- Congress of Neurological Surgeons
- International Society for Pediatric Neurosurgery
- LifeNPH
- York Neurosurgical Associates
- Children's Neurobiological Solutions Foundation
- Dandy Walker Alliance
Parenting
Procedures & Treatments
- Treatment of Hydrocephalus: Shunts
- Percutaneuous Cecostomy (Canadian Site)
- Cecostomy Website Info Page
- Drugwatch.com
- Fetal Surgery Resources, Texas Children's Hospital
- Fetal Surgery for Spina Bifida-Fetal Care Centre Cincinnati
- Centre for Fetal Diagnosis & Treatment-Children's Hospital of Philadelphia
- Prevent Pressure Sores/Ulcers Awareness Website
Recreation
- Alpine Canada
- Adaptive Movements
- Argonaut Adaptive Rowing Program
- Atalntis Aquatics
- Bodiworks Centre for Specialized Wellness
- Camp Awakening
- Canadian Association for Disabled Skiing
- Canadian Association For Health, Physical Education, Recreation and Dance
- Canadian Paralympic Committee
- Canadian Parks/Recreation Association
- Canadian Therapeutic Recreation Association
- Canadian Therapeutic Riding Association-CANTRA
- Canadian Wheelchair Sports Association
- Canadian Yachting Association
- CARD Community Association for Riding for the Disabled
- Cruiser Sports Mississauga
- Disabled Sailing Association of Ontario
- Exercise Tips for Wheelchair Users
- Golden Horseshoe Disabled Sports Association
- Hamilton Challenger Baseball Association
- Hamilton Sledgehammers
- Kingston Y Knot Abilities Programs
- Kitchener-Waterloo Track & Field Association
- Lanark County Therapeutic Riding Program
- London Blizzard Sledge Hockey Club
- London Wheelchair Basketball
- Ontario Sledge Hockey Association
- Ontario Wheelchair Sports Association
- Ottawa Lions Track & Field Club
- Ottawa Carelton Wheelchair Sports Association
- Paddle Canada-Canadian Recreational Canoeing Association
- Paralympic Schools Program
- Parasport Ontario (formerly Sport for Disabled Ontario)
- Pride Stables-•Central Ontario Developmental Riding Program
- Recreational Respite
- Sport by Ability Niagara
- Sports for Disabled Associations-Sarnia/Lambton
- Toronto Parks & Recreation Adapted Programs
- Toronto Sledge Hockey
- Tri-Spin Equipment Conversions for bicycles
- Variety Village
- Wheelchair Basketball Canada
- Windreach Farms
- Windsor Aquatics Club
Research
- Birth Defects Research for Children
- CanChild Centre for Childhood Disability Research
- Holland Bloorview Research
- CanChild - Centre for Childhood Disability Research
- Hospital for Sick Children, Toronto
- Kennedy Krieger Institute
- Medscape
- Professor Brodland, University of Waterloo
- Spina Bifida & Hydrocephalus Association of Canada
- MOMS-Management of Myelomeningocele Study
- Duke Center for Human Genetics
- STARS-Seeking Techniques Advancing Research in Shunts
- Hydrocephalus Clinical Research Network
- Society for Neuroscience
Respite
- Child Development Resource Connections Peel Respite Services
- Holland Bloorview Family Resource Centre - Respite
- Premier Homecare Services
- Recreational Respite
- Carefect Home Care Services
Syringomyelia
- American Syringomyelia Alliance Project
- Canadian Syringomyelia Network
- Syringomyelia Fact Sheet - National Institute of Neurological Disorders and Stroke
Transition & Adult Services
- Anne Johnston Health Station-Toronto
- Door 2 Adulthood
- Harmony Place Support Services
- Holland Bloorview Family Resource Centre - Growing Up
- Just Believe Website highlights a personal Journey to Independence!
Miscellaneous Access and Disability Links
- Access 2 Entertainment
- Parent Guide All-in-one Website (Ontario)
- Disaboom Online Community
- Disabled World
- Accessible Parking Permit/Ministry of Transportation
- Sibling Support Project-US based
- Disabled Online
- Ontario Government Directory for Accessibility
- Center for Women Policy Studies-Women & Girls with Disabilities: Defining the Issues
- The Charity Jobseeker
- Global Community of Disability Related Resources
- Accessibility News
- Charity Village - Non-profit Sector Resources
- City of Toronto Accessibility Plan
- Disability is Natural
- National Birth Defects Prevention Network
- Special Needs Family Fun
- Wheelchair Accessible Transit Inc.
- DriveAble-Driver Rehabilitation Services at St. Elizabeth Health Care (formerly program at Bloorview MacMillan Centre)
- Diseases and Conditions website
- Ontario Immigration Website for Newcomers to Ontario
- Dating 4 Disabled
- Mobilize-A Disability Advocate Community
- The Glass Eye-Disabled Photographers of Ontario
- Kids on Wheels
- The Special Life-Unique & Custom Tools for Special Needs Living
- Waterloo Region Resource
- 101 Accessible Vacations
- In-Home Salon Experience
- Norest Discount Medical Supplies
- Milo My Ninja Seal Spina Bifida Awareness T-shirts
- World on Wheelz Accessible Travel
- MedBroadcast
- www.holdinoutforahero.org
- Holland Bloorview Family Resource Centre - In Hospital
- Holland Bloorview Family Resource Centre - My Child Has...
- 1-800 Wheelchair.com News, Articles & Resources
- Innovations by You - Continence information, tips, tricks, etc
- 211 Ontario
- 211 Toronto
- www.missability.ca
- Vital Card
- Special Needs Computers
