Useful Links
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Select from the following groups of links:
- Spina Bifida & Hydrocephalus
- Hydrocephalus
- Spina Bifida
- Affiliated Organizations
- Alternative Therapies
- Animal Assisted Services
- Arnold Chiari
- Children's Treatment Centres
- Clothing
- Complimentary Medical Options
- Community Service Agencies
- Education
- Employment Supports
- Fetal Diagnosis
- Folic Acid
- Funding Assistance
- Housing & Attendant Services
- Latex Allergy
- Legal Services
- Mobility Devices
- Neurology
- Procedures & Treatments
- Recreation
- Research
- Syringomyelia
- Miscellany
- Spina Bifida & Hydrocephalus Association of Canada
- Spina Bifida & Hydrocephalus Association of British Columbia
- Spina Bifida & Hydrocephalus Association of Northern Alberta
- Spina Bifida & Hydrocephalus Association of Southern Alberta
- Spina Bifida and Hydrocephalus Association of Nova Scotia
- l'Association de Spina-Bifida et d'Hydrocéphalie du Québec
- Arbeitsgemeinschaft Spina bifida und Hydrocephalus e.V. - Germany
- Association for Spina Bifida and Hydrocephalus - United Kingdom
- Associazione Piemontese Spina Bifida e Idrocefalo - Italy
- International Federation for Hydrocephalus and Spina Bifida
- Spina Bifida Hydrocephalus Queensland
- Spina Bifida & Hydrocephalus of South Australia Inc.
- Spina Bifida Foundation Victoria, Australia
- Scottish Spina Bifida Association
- Assoicacao de Hidrocefalia e Mielomeningocele de Ribeirao Preto - Brazil
- SBHydro-Friends
Hydrocephalus
- All About Normal Pressure Hydrocephalus
- LifeNPH
- Dandy Walker Syndrome
- Hydrocephalus Association - San Francisco
- The Hydrocephalus Foundation, Inc (HiFI)
- The Children's Hydrocephalus Support Group
- Maternal Hydrocephalus
- Hydrocephalus Fact Sheet - National Institute of Neurological Disorders and Stroke
- Patient Centres - Hydrocephalus
Spina Bifida
- Spina Bifida Association of America
- Children with Spina Bifida: A Resource Page for Parents
- Colorado Spina Bifida Association
- Resources for People Interested in Spina Bifida & Related Disorders
- Scottish Spina Bifida Association
- Italian Spina Bifida Association
- Spina Bifida Association of Connecticut
- Spina Bifida Association of Greater New Orleans
- Spina Bifida Association of Kentucky
- Spina Bifida Association of the Tri-State Region
(New Jersey, New York & Southern Connecticut) - Spina Bifida Central
- Spina Bifida Parents Online
- Information for Adult Females with Spina Bifida
- Information site for Spina Bifida Community (US based)
Affiliated Organizations
- Neurological Health Charities Canada
- Easter Seal Society
- Canadian Continence Foundation
- Anencephaly Support & Information
- Birth Defects Research for Children
- Bosk Dutch Association for Motor Handicapped Children & Parents
- Canadian Paraplegic Association of Ontario
- Hospital for Sick Children (Toronto)
- Tetra Society of Ontario
- ARCH-A Legal Resource Centre for Persons with Disabilities
- ODA-Ontarians with Disabilities Act Committee
- Epilepsy Toronto
- National Organization of Disorders of the Corpus Callosum
- Motherisk-Hospital for Sick Children, Toronto
- Special Services at Home Provincial Coalition
- Support Workers for SSAH-University of Toronto Career Centre
- Family Alliance Ontario
- CanChild Centre for Childhood Disability Research
- Citizens with Disabilities-Ontario
- Paralysis Resource Centre
- Reach Canada-Equality & Justice for People with Disabilities
- Opportunities for the Disabled Foundation
- Lifetime Networks Ottawa-An Alliance of PLAN
- Planned Lifetime Advocacy Network
- TASH
Alternative Therapies
- College of Chiropodists of Ontario
- Ontario Massage Therapist Association
- Acupuncture Foundation of Canada Institute
- Shiatsu Society of Ontario
Animal Assisted Services
- National Service Dogs Training Centre Inc.
- Canines With A Cause
- COPE Service Dogs
- Canadian Foundation for Animal-Assisted Support Services
- Diamond in the Ruff Medical Dogs
- Encouraging Paws Service Dogs
- Special Skills Dogs of Canada
Arnold Chiari
- World Arnold Chiari Malformation Association Web Site
- Chiari Malformation Information - National Institute of Neurological Disorders & Stroke (US)
- Chiari EGroup
- Chiari Kids EGroup
- Chiari Malformation Information - Columbia University Medical Center
Children's Treatment Centres
- Ontario Association of Children's Rehabilitation Services-Children's Treatment Centres
- Belleville-QHC Children's Treatment Centre
- Brantford-Lansdowne Children's Treatment Centre
- Children's Treatment Centre of Chatham-Kent
- Halton/Peel-Erinoak, Serving Young People with Physical Disabilities
- Hamilton-Children's Developmental Rehabilitation Programme
- Kingston-Child Development Centre
- London-Thames Valley Children's Centre
- Oshawa-Grandview Children's Treatment Centre
- Ottawa-Children's Treatment Centre
- Peterborough-Five Counties Children's Centre
- St. Catharines-Niagara Peninsula Children's Centre
- Sarnia-Pathways Health Centre for Children
- Timmins-Cochrane Temiskaming Children's Treatment Centre
- Thunder Bay-George Jeffrey Children's Treatment Centre
- Toronto-Bloorview MacMillan Centre
- Waterloo-KidsAbility Centre for Child Development
- Windsor-John McGivney Children's Centre
- Children's Treatment Network of Simcoe York
- Texas Children's Hospital, Fetal Surgery
Clothing
- Above the Challenge (Clothing)
- Epiphany Design - Functional Outerwear
- TheraFleece WoodHoodz Wear
- Kymotion Clothing Designs
- Comfortable Allergy-free Clothing
- Comfort n Care-Specializing in Adaptive Apparel & Accessories
Complimentary Medical Options
- Ontario Chiropractic Association
- Ontario Society of Chiropodists
- Ontario Association of Naturopathic Doctors
Community Service Agencies
- Ability Online Support Network
- Accessibility Directorate of Ontario & Accessibility Ontario
- Access Guide Canada
- Active Living Alliance for Canadians with a Disability
- Community Information Toronto
- Eastern Ottawa Resource Centre
- EnableLink-Canada's On line Community for People with Disabilities
- Extend-a-Family -Kitchener
- Family Info London-Middlesex Region
- Hamilton Family Network
- Health Canada-People with Disabilities
- Health Care Information in London/Middlesex
- Information London
- InformOntario-Association of Community Information Centres
- Kids Help Phone
- Accessibility for Ontarians with Disabilities
- Persons with Disabilities On-Line
- St. Bernadette's Family Resource Centre-A Parent Support Group for Special Needs
- Women's Health Matters-Sunnybrook & Women's College Health Sciences Centre
- Child Development Resource Connection Peel
- Family Respite Services Ontario
- Checkpoint-Provincial Centre of Excellence for Child & Youth at CHEO
- Essex County Disability Awareness Forum
- Parent Guide Online Directory for Ontario
- Hellenic Hope Centre for Persons with Special Needs
- YMCA/YWCA's in Ontario
- Community Living Ontario
- Salvation Army Neighbourhood Services Centre-Windsor, ON
- AdvoCare Canada-Advocating Improved Care & Services for the Disabled Community in Canada
- DisabilityHealth Promotion Network
- Family Support & Resource Network-Chatham/Kent
Education
- Sample Individual Education Plans
- What You Need to Know About Individual Educatio Plans
- Learning Disabilities Association of Canada
- Learning Disabilities Association of Ontario
- Angus Lloyd & Associates-Eduational Consultants
- Precious Minds-Providing support to families with children who have barriers to learning.
- National Educational Association of Disabled Students (NEADS)
- Project Work
- Integra-Improving the lives of Children & Youth living with Learning Disabilities
- Ontario Association of Education Advocates
- School Advocacy Hamilton (for parents of special education pupils)
- SNOW-Special Needs Opportunity Windows
- School Advocacy Hamilton
- Hospital for Sick Children-Epilepsy Classroom
- Ministry of Education-Parents Reaching Out Grants
- Free Student Tutor Networking Resource
- School Health Support Services-Community Care Access Centre of Peel
- Student Awards (Scholarships, Grants and Financial Assistance)
Employment Supports
- National Education Association of Disabled Students Online Work System
- Ontario March of Dimes
- Employment Access
- Avocation Employment Alliance of Durham
- The Business Education College-Halton/Peel
- Enablelink
- Adaptive Technology Resource Centre-Employment Accommodation Services
- JVS Toronto
- Link Up Employment Services for Persons with Disabilities
- Canadian Paraplegic Association Ontario Employment Services
- Opportunities Fund for Persons with Disabilities
- Ontario Disability Support Program-Employment Supports
- Workink Canada-Virtual Employment Resource Centre by Canadian Council on Rehabilitation & Work
- LEADS-Employment Services London for People with Disabilities and/or Barriers
- SWAT - The Job Listing and Support Service
- Altis HR Recruiting Solutions
- ALDER Centre-Adult Learning Disabilities Employment Resources
- Canadian Council on Rehabilitation and Work-Workplace Essential Skills Partnership
- YMCA Employment Services
- Retail Employment Action Career Hub (REACH)
- Diversity Careers
- Employment Equity Designated Groups-Public Service Commission of Canada
- Possibilities-Toronto's Online Employment Resource
- Family Services of Peel-Ready, Willing & Able Employment Support
- Employ-Ability Program-Independent Living Resource Centre Sudbury Manitoulin
- Employ-Ability Program-Neil Squire Society-Pembroke
- Employ-Ability Program-Neil Squire Society-Ottawa
- Jobs Abilities - Canadian Abilities Foundation and Workopolis NicheNetwork On-line Job Board
Fetal Diagnosis
- Center for Fetal Diagnosis and Treatment at Children's Hospital of Philadelphia
- Fetal Surgery for Spina Bifida Diagnosis at Fetal Care Center of Cincinnati
- Fetal Surgery for Spina Bifida Diagnosis at UCSF Fetal Treatment Center
- MOMS-Management of Myelomeningocele Study of Prenatal & Postnatal Surgery for Spina Bifida
Folic Acid
- Folic Acid Alliance Ontario
- Motherisk
- Joint SOGC-Motherisk Clinical Practice Guideline on the use of folic acid
- Health Canada - Folic Acid
- Motherisk
- CNN - Study: Folic Acid
- FDA - Folic Acid Awareness
- Folic Acid Campaign
- New York State Dept. of Health - Folic Acid
- Periconceptional Use of Folic Acid to Reduce Risk of Neural Tube Defects
- US Food and Drug Administration - Folic Acid Fortification
- Folic Acid Facts for Men
Funding Assistance
- Assistive Devices Program
- Ontario Disability Support Program (ODSP) Ministry of Community and Social Services
- Ontario Disability Support Program (ODSP) Handbook from Citizens with Disabilities Resource Centre
- Assistance for Children with Severe Disabilities
- Disability Tax Credit
- Canada Customs & Revenue Agency Child Disability Benefit
- Easter Seal Society-Assistive Devices Program for Incontinence Supplies for Children 0-18 years of age
- CILT-Centre for Independant Living Toronto-Direct Funding Program
- Community AccessAbility Program
- Individualized Funding Coalition Ontario
- Ontario Disability Support Program
- Ontario Drug Benefit Program
- Trillium Drug Program
- Precious Minds-Provide financial assistance to make needed programs, therapies and equipment accessible.
- Special Needs Planning Group-Financial Planning
- The Law Office of Kenneth C. Pope-Henson Trust Specialists
- LifeTrust Planning
- Planned Lifetime Advocacy Network
- Windsor Essex Brokerage for Personal Supports
- Canada Benefits Finder Service On-Line
- Registered Disability Savings Plan
Housing & Attendant Services
- Canadian Association for Independent Living Centres
- Gage Transition to Independent Living
- Community Living Ontario
- Centre for Independent Living - Toronto (CILT)
- Independent Living Centre London & Area
- Community Living Chatham Kent
- Guelph-Wellington Barrie Free Communities
- Ottawa-Carleton Independent Living Centre
- Participation House - Waterloo Region
- Participation House Support Services - London & Area
- Participation Lodge
- Community Living Windsor
- Tobias House-Attendant Care
- Barrier Free Architecturals Inc.
- Nucleus Independent Living
Latex Allergy
- Latex Allergy Links
- American Latex Allergy Association
- Canadian Allergy, Asthma and Immunology Foundation
- Article on Latex and Toys
- Latex Allergy Support Group
- Natural Rubber Latex (NRL) Allergy discussion online
- Allergy Safe Communities
- Anaphylaxis Canada
Legal Services
- ARCH-A Legal Resource Centre for Persons with Disabilities
- Sommers & Roth Barristers & Solicitors
- Child Advocacy Project
- Citizens with Disabilities - Ontario
- Pro bono Law Ontario-Specializing in Education Matters
- Justice Net Non-For-Profit Legal Information
Mobility Devices
Neurology
- Montreal Neurological Institute
- Canadian Congress of Neurological Sciences
- National Institute of Neurological Disorders and Stroke
- Neurological Disorders in Children - Beth Israel Medical Center
- Pediatric Neurosurgery Home Page - Columbia University Medical Center
- York Neurosurgical Associates
- American Association of Neurological Surgeons
- Congress of Neurological Surgeons
- International Society for Pediatric Neurosurgery
- LifeNPH
- York Neurosurgical Associates
- Children's Neurobiological Solutions Foundation
- Dandy Walker Alliance
Procedures & Treatments
- Treatment of Hydrocephalus: Shunts
- Percutaneuous Cecostomy (Canadian Site)
- Cecostomy Website Info Page
- Fetal Surgery Resources, Texas Children's Hospital
- Fetal Surgery for Spina Bifida-Fetal Care Centre Cincinnati
- Centre for Fetal Diagnosis & Treatment-Children's Hospital of Philadelphia
- Prevent Pressure Sores/Ulcers Awareness Website
Recreation
- A Canadian Paralympic Committee website providing details of sport for persons with a disability to learn about the sports best suited to their abilities and interests, and to locate national, provincial, or local sporting associations.
- Camp Awakening
- Paralympic Schools Program
- Toronto Sledge Hockey
- Canadian Association for Disabled Skiing
- CARD Community Association for Riding for the Disabled
- Canadian Wheelchair Basketball Association
- Canadian Parks/Recreation Association
- Canadian Therapeutic Recreation Association
- Canadian Wheelchair Sports Association
- Canadian Association For Health, Physical Education, Recreation and Dance
- Cantra-Canadian Therapeutic Riding Association
- Golden Horseshoe Disabled Sports Association
- Variety Village
- Canadian Paralympic Committee
- Canadian Recreational Canoeing Association
- Canadian Yachting Association
- Ontario Wheelchair Sports Association
- Canadian Paraplegic Association
- Central Ontario Developmental Riding Program
- Lanark County Therapeutic Riding Program
- Paralympics Ontario (formerly Sport for Disabled Ontario)
- Jackson Services Inc. Recreation Therapy
- Ottawa Lions Track & Field Club
- Ottawa Carelton Wheelchair Sports Association
- Breaking Down Barriers Collingwood
- Windsor Bulldogs Disabled Sports Club
- Sport by Ability Niagara
- Cruiser Sports Mississauga
- Ontario Sledge Hockey Association
- Ontario Sledge Hockey Clubs
- Hamilton Challenger Baseball Association
- Kitchener-Waterloo Track & Field Association
- Sports for Disabled Associations-Sarnia/Lambton
- Toronto Accessible Sports Council
- Disabled Sports USA
- Tri-Spin Equipment Conversions for bicycles
- Alpine Canada
- Adaptive Movements
- Toronto Parks & Recreation Adapted Programs
- Windsor Aquatics Club
- Kicksmart Workshops & After School Programs
- Argonaut Adaptive Rowing Program
- London Blizzard Sledge Hockey Club
- Ontario Sailing Access Boom - Info Flyer
- Toronto Skate Elite - Info Flyer
- Windsor Boccia Ball - Info Flyer
- Ynot Abilities Program Mississauga YMCA - Info Flyer
- Ynot Abilities Program Durham YMCA - Info Flyer
- Adapted Aquatics for Children & Teens-Waterloo/Kitchener - Gus Siountres at 519-886-7122 ext. 229 or Janet at 519-741-2493
- Boccia Ball Kitchener - 519-741-2228
- Golf Lessons & Camps for Persons with Disabilities in Kitchener/Waterloo - Kathy Braun at 519-741-2228 or email kathy.braun@kitchener.ca
- Hamilton Sports Challengers - Kim Morgan at 905-549-6525
- Burlington Disabled Sports Association - Marsh Hotten at 905-844-8429
- Burlington Vipers Wheelchair Basketball Association - Chris Chandler at 905-332-9261 or email c.chandler@cogeco.ca
- Stoney Creek Disabled Sports Association - Gary Zik at 905-945-5843
- London Wheelchair Basketball - Paul Bowes at 519-471-4189 or email pbowes@execulink.com
- Kingston Family YMCA Wheelchair Basketball - Adam Arturs at 613-546-2647 ext.245 or email adam_arturs@kingston.ymca.ca
Research
- Association for Spina Bifida & Hydrocephalus - United Kingdom
- Bloorview Kids Rehab
- CanChild - Centre for Childhood Disability Research
- Hospital for Sick Children, Toronto
- Kennedy Krieger Institute
- Medscape
- Professor Brodland, University of Waterloo
- Spina Bifida & Hydrocephalus Association of Canada
- MOMS-Management of Myelomeningocele Study
- Duke Center for Human Genetics
- STARS-Seeking Techniques Advancing Research in Shunts
Syringomyelia
- American Syringomyelia Alliance Project
- Canadian Syringomyelia Network
- Syringomyelia Fact Sheet - National Institute of Neurological Disorders and Stroke
- Syringomyelia
Miscellany
- Access 2 Entertainment
- Ability Online Support Network
- Parent Guide All-in-one Website (Ontario)
- Disaboom Online Community
- Door 2 Adulthood
- Accessible Parking Permit/Ministry of Transportation
- People Today-Magazine for Persons with Disabilities
- Sibling Support Project-US based
- Disabled Online
- Ontario Government Directory for Accessibility
- Center for Women Policy Studies-Women & Girls with Disabilities: Defining the Issues
- Charity Job Search - Work That Matters
- Global Community of Disability Related Resources
- Accessibility News
- Charity Village - Non-profit Sector Resources
- City of Toronto Accessibility Plan
- Disability is Natural
- National Birth Defects Prevention Network
- Special Needs Family Fun
- Wheelchair Accessible Transit Inc.
- DriveAble-Driver Rehabilitation Services at St. Elizabeth Health Care (formerly program at Bloorview MacMillan Centre)
- Diseases and Conditions website
- Ontario Immigration Website for Newcomers to Ontario
- Dating 4 Disabled
- Mobilize-A Disability Advocate Community
- The Glass Eye-Disabled Photographers of Ontario
- Access-R-Ease Innovative Accessories with Style
- Kids on Wheels
- The Special Life-Unique & Custom Tools for Special Needs Living
- Waterloo Region Resource
- 101 Accessible Vacations
- Beautiful People Photography-Accessible Family Photography
- In-Home Salon Experience
- Just Believe Website highlights a personal Journey to Independence!
- Norest Discount Medical Supplies
- Milo My Ninja Seal Spina Bifida Awareness T-shirts
- World on Wheelz Accessible Travel
- MODMobility Online Store of Assistive Devices (March of Dimes program-recycled equipment, refurbished)
- KneeBouncers.com