Well, you aren't alone. Living with spina bifida and/or hydrocephalus (sb&h) can be tough sometimes. We are here to help!
You or your parents can pick up the phone and call SB&H for confidential advice or help with things like school, or questions about spina bifida and hydrocephalus. Here are just a few things you can do to help yourself:
SB&H can link you with others who are going through just what you are. Talking to someone with similar experiences could be the missing link. It helps you know that others like you are out there and have learned to cope. A link can be an a great new friend or simply someone to listen.
It's easy to get linked! Call 416-214-1056 or 800-387-1575 or email firstname.lastname@example.org
Ability Online is a meeting place for youth with disabilities and their friends and siblings to connect on the web with others all over the world, share their hopes and fears, and discuss real issues in a safe and secure real-time chat environment.
AbilityOnline welcomes all kids, teens and young adults (up to forty years of age) onto their website. Approximately 3,000 members of all abilities visit the website each year, and membership is free.
By joining AbilityOnline, members have 24/7 access to friendship, support, sharing of information and skill development opportunities in a monitored, bully-free and family friendly environment. Whether the issues are health related, educational, vocational, or recreational there are people of all ages and abilities online waiting to answer questions, or at least point members in the right direction. To make it easier to find the right connections, their website has been divided into four separate sections: “Kids and Teens”; “Young Adults and Alumni”; Parents” and “Professionals”.
AbilityOnLine also has over 200 Community and Health Care Partnerships across Canada and United States. These partnerships are primarily with acute care and pediatric hospitals, rehabilitation centres, group homes, and other health-related organizations, as well as some schools and other community associations. The goal behind these partnerships is to reach people who are undergoing treatment and could use the extra support, friendship and knowledge from those who have been there.
Anyone interested in joining the SB&H kids chat needs to become a member of AbilityOnline in just a few simple steps:
Once you receive this access code follow the steps in the letter and you will have full access to the program. You only need to enter the access code once. Every other time you log on to Ability Online you enter your name and password you created. If you need help, email email@example.com.
We host regular events for youth ages 16-29, as a chance for young adults to meet and socialize.
Event organizers include Bloorview Kids Rehab, Anne Johnston Health Station, Gage Transition to Independent Living, City of Toronto Parks & Recreation (North District) and SB&H.