What We Do at SB&H

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SB&H offers a caring community for people affected by spina bifida and/or hydrocephalus (sb/h) through support, education and awareness, advocacy and research. Our programs and services are free of charge. No matter where in Ontario you live we are here to help by providing:

CARE & SUPPORT - Make connections and lean on others

  • 800-387- 1575 Toll Free, One-on-one support, advice and guidance via an Ontario wide toll free help line and email, available Monday to Friday,, 9:00am - 4:30pm EST
  • A linking service connecting you to others affected by sb/h in your community or beyond 
  • Support and social groups
  • Transition services empowering young people with sb/h  through the Getting You There program
  • Online Forum and social media community via Facebook, Twitter and LinkedIn
  • Personal stories of those affected by sb/h and an opportunity to share yours
  • Scholarship and bursary programs for post secondary students with sb/h


EDUCATION & AWARENESS - Learn, stay informed and be proactive

  • Information and referral services to answer your questions and locate community resources via an Ontario wide toll free help line and email, available Monday to Friday, 800-387-1575, 9:00am - 4:30pm EST
  • Educational and information resources published by SB&H and the best from around the world, including brochures, complimentary packages, kits, books, CDs DVDs
  • Current magazine and Staying Connected, our online e-newsletter
  • Resource Centre and lending library housing the most up to date material on sb/h and disability related topics
  • Web sites (www.sbhao.on.ca and www.folicacid.ca) with extensive, to the minute information about hydrocephalus and spina bifida
  • Public education programs and healthcare community awareness about the impact of living with sb/h, prevention through folic acid use, and diagnosis and treatment of Normal Pressure Hydrocephalus (NPH)
  • Sponsorship for puppet troupe programs that teach school-age children about sb/h and acceptance


ADVOCACY - Create a welcoming society

  • The collective voice for fostering understanding and systemic, positive change through partnerships and coalitions
  • An ambassador program appointing and supporting representatives speaking out on behalf of the sb/h community


RESEARCH ENDORSEMENT - Build hope for the future

  • Funding research leading to the improvement of quality of life for people with sb/h and their families
  • Research promotion assisting and encouraging scientists and the medical community to advance studies of sb&h.

Living with spina bifida and/or hydrocephalus (sb/h) can be challenging. The Spina Bifida and Hydrocephalus Association of Ontario (SB&H) is here to help. Our programs respond to the unique needs of individuals with these conditions, living in communities across Ontario.

When you contact SB&H, you will receive personal support, guidance and educational materials to help you understand and cope with the issues that arise with sb/h:

(Toll-Free within Ontario)