Personal Stories

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Personal Stories

Growing up with spina bifida, a birth defect that affects the spine, I was never physically active. I believed my disability excluded me from keeping fit. My peers would ridicule me in gym class because I could not keep up. Their mocking left me self-conscious.

Danny Lamb 2013.jpg

Since I attended my first SB&H meeting in Toronto as a 19 year old Brock Music major from Niagara on the Lake, my life has grown and shifted in ways that I never could have imagined. I’ve conquered some incredibly steep and slippery slopes, and have been places and seen things that most people can only read about. I truly feel blessed, and overwhelmingly grateful. Knock on wood that my luck continues in health and wellness through 2013 and the years that follow.

By Dr. James Wright (formerly of The Hospital for Sick Children in Toronto)

Parents of children with spina bifida are overwhelmed at birth with multiple health concerns. Unfortunately those concerns never go away. The initial focus is usually on the closure of the spina bifida and the possible need for a shunt. However as those issues resolve, inevitably at some point parents want to understand how their child will function in their environment; will they walk, run, or play sports? Every child is different and we never want to extinguish hope but there are some general expectations based largely on the function of the nerves to the legs.

Jordan Sarraf is your typical 15-year-old boy.

He loves his Nintendo DS, eats like a champ and knows how to push his mothers buttons. You may even say he’s more active than the average teenage boy. He’s a competitive 10-pin bowler, swims weekly, enjoys cooking and is a visual artist whose work has been featured in a charitable calendar. He was even excited to get back to school after summer break. What does not make Jordan a typical teenager is the fact that he is a teenager at all.

At birth Jordan was given a four-month life expectancy.