Who We Are...

For over 40 years, the Spina Bifida & Hydrocephalus Association of Ontario (SB&H), has been committed to making a positive difference in the lives of individuals with spina bifida and/or hydrocephalus.



Spina Bifida & Hydrocephalus Association of Ontario (SB&H)

First In-utero Surgery in Canada for the Treatment of Spina Bifida a Success

TORONTO – In a Canadian first, a team from Mount Sinai Hospital and The Hospital for Sick Children (SickKids) has repaired a form of spina bifida in a fetus at 25 weeks gestation.

The baby’s mother, Romeila Son, recovered very well from surgery, and a bouncing baby girl, Eiko, weighing 2.45 kg, was born on August 19 at 36 weeks gestation at Mount Sinai Hospital. Since her birth, Eiko has needed no further intervention for this usually debilitating condition. This is the first case in Canada where the mother has not had to travel to the United States for this specialized surgery.

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News Release

HYDROCEPHALUS CANADA launches to address the needs of the growing number of Canadians living with hydrocephalus and normal pressure hydrocephalus

TORONTO, ON - Monday, October 23, 2017 - Hydrocephalus Canada, a newly created national charitable association, today announced a nation-wide mission to provide resources and support for Canadians living with hydrocephalus and normal-pressure hydrocephalus (NPH).

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SB&H Adult Hydrocephalus Support Group
is BACK!!

Are you an adult living with hydrocephalus? Would you like to talk to other people living with it too? 

Then join the Adult Hydrocephalus Support Group. We meet on the LAST WEDNESDAY of EACH MONTH at the SB&H offices. If you do not live in or near Toronto, YOU CAN STILL JOIN the meetings by conference call. 

Anyone interested in coming to a meeting or being connected via conference call, please contact Steve Kean at skean@sbhao.on.ca or by phone at 800-387-1575 or 416-214-1056 ext. 226. 

We Need A Group Facilitator

We are also looking for an adult with hydrocephalus who would be interested in facilitating the group meetings. If you are interested, please let Steve know as soon as possible.

The next meeting of the Adult Hydrocephalus Support Group is on Wednesday, November 29 from 5:30-7:30 p.m.

Are you a woman with spina bifida, and 14-49 years old? Your insight would be valuable to help us understand the current knowledge gaps and barriers to providing safe care to women like you who a...
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SB&H is pleased to announce that we are continuing our partnership with Ontario-based EmergencyID. As a special offer, anyone interested in the safety and assurance of a custom medical ID product...
SB&H offers a caring community for people affected by spina bifida and/or hydrocephalus (sb/h) through support, education and awareness, advocacy and research. Our programs and services are free o...
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You can download PDF versions of ALL of the brochures produced and distributed by the Spina Bifida and Hydrocephalus Association of Ontario including the new Normal Pressure Hydrocephalus brochure fro...
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On Monday, May 29, SB&H hosted our 12th Annual Charity Golf Challenge at Cardinal Golf Club in Newmarket. While the weather threatened early in the morning, it cleared up just in time for the golf...
Spirit Wheel Walk Run (SWWR) events were once again successful in raising awareness of the conditions across the province.  Throughout Ontario, families, friends and loved ones proudly took the o...
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On this page you will find links to articles from Current Magazine on a wide variety of topics. They are samples of what you can read in every issue of CURRENT for FREE if you decide to join SB&H....
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The landmark National Population Health Study of Neurological Conditions Study provides a goldmine of data and information that will be instrumental in better meeting the health and social needs of Ca...