Who We Are...

For over 40 years, the Spina Bifida & Hydrocephalus Association of Ontario (SB&H), has been committed to making a positive difference in the lives of individuals with spina bifida and/or hydrocephalus.



Spina Bifida & Hydrocephalus Association of Ontario (SB&H)

For three days a week, Steve Kean is the Programs & Services Coordinator here at SB&H. On his own time, Steve is a passionate photographer. His latest work, Spina Bifida Front to Back marks the first time he has focused his camera on spina bifida.

Living with the condition himself gives both the work he does for the Association and this project a great deal of meaning in his life. 

Beauty Exposed
(Reprinted with permission from BLOOM, the Holland Bloorview Kids Rehabilitation Hospital Blog)

By Louise Kinross

“I was nervous… about seeing my own back... something that nobody sees... out in the open. I thought my back was going to be… what’s the word... grotesque? After I saw it, I thought, that’s not bad. It is my body and that’s it.”

Photographer Steve Kean remembers sitting, as a child, on a stretcher, “nearly nude, and being talked about as if I wasn’t there by this doctor and that doctor. There was an ampitheatre with tiered seating and [medical students] watched. I was looked at as spina bifida, not as a person.” Read more...

Applications for the 2015 Dr. E. Bruce Hendrick Scholarship Program are available now for individuals with spina bifida and/or hydrocephalus. 
The 2015 Luciana Spring Mascarin Bursary Program is now open for individuals with spina bifida and/or hydrocephalus who are residents of the Windsor-Essex and Chatham-Kent region.
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The landmark National Population Health Study of Neurological Conditions Study provides a goldmine of data and information that will be instrumental in better meeting the health and social needs of Ca...
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On this page you will find links to articles from Current Magazine on a wide variety of topics. They are samples of what you can read in every issue of CURRENT for FREE if you decide to join SB&H....
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Neurological Health Charities Canada (NHCC) is a collective of organizations that represent people with chronic, often progressive, brain and nervous system diseases, disorders and injuries in Canada....