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Old 05-31-2010, 06:56 PM
Elena936 Elena936 is offline
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Join Date: May 2010
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Default want to start support group in Dufferin county for Spina Bifida or Tethered cord

Hi my name is Helen, I am 46 yrs old and have SB occulta with tethered cord. I had sugery in 1998 to repair the tethered cord. I had always had alot of pain in my legs and lower back, numbness in my ankles and feet. I was recently hospitalized last fall for exhaserbation of pain. I am doing somewhat better know, but it`s very frustrating when I have exhausted all avenues regarding my pain, medications, therapies, etc.. and I still struggle daily with pain. I just wanted to know if there is anyone in the dufferin county area who would be interested in starting up a support group
Thanks,
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