Home      Members List      Register Now!

Go Back   SB&H Forum > Spina Bifida Community > Connect with others

Reply
 
Thread Tools Display Modes
  #1  
Old 10-30-2003, 07:15 PM
Skyebandit Skyebandit is offline
Junior Member
 
Join Date: Jun 2003
Posts: 1
Default Lipomyelomeningocele Family Support Net

LFSN is a not-for-profit organization run strictly by parents of children born with OSD and tethered cord.

I am desperately trying to get a new webhost so I can update the information on our web page.* If anyone knows of any company that donates space to parent-oriented organizations, please let me know.* Our site is in desperate need of updating and I know absolutely nothing about web page management.

FYI, here's where we are right now.* The space has been donated by a company, but they won't do updates or changes.

We desperately need to start communicating again and providing support to parents of children born with this rare form of Spina Bifida.* There really isn't any support out there.

Thanks

Pam

www.lfsn.org

*

*

Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump



All times are GMT. The time now is 12:14 PM.


Powered by vBulletin®
Copyright ©2000 - 2017, Jelsoft Enterprises Ltd.