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Old 10-30-2003, 06:15 PM
Skyebandit Skyebandit is offline
Junior Member
Join Date: Jun 2003
Posts: 1
Default Lipomyelomeningocele Family Support Net

LFSN is a not-for-profit organization run strictly by parents of children born with OSD and tethered cord.

I am desperately trying to get a new webhost so I can update the information on our web page.* If anyone knows of any company that donates space to parent-oriented organizations, please let me know.* Our site is in desperate need of updating and I know absolutely nothing about web page management.

FYI, here's where we are right now.* The space has been donated by a company, but they won't do updates or changes.

We desperately need to start communicating again and providing support to parents of children born with this rare form of Spina Bifida.* There really isn't any support out there.






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