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Old 12-12-2005, 08:16 PM
jaelove jaelove is offline
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Join Date: Dec 2005
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Default don’t know what to do

hi,

i was diagnosed in january 2005 with hydrocephalus..they have done mri scans,ct scans, and spinal taps.now they are not treating it at all. the pressure in my head is getting worse everyday. i go to the hospital and they do nothing for me. i was told by my dr and my nuerologist that the surgery would be my best option. for some reason the nuerosurgeon who diagnosed me and had admitted me back in jan as a possible surgery no longer wants to do the operation.my condition has progressed tremendously since january. i have 2 small children to take care of and it gets harder everyday to do that. i have drop attacks alot i fall down for no reason at any given moment. i have fallen a few times with my 2 year old in my hands.. if anyone can give me some advice on what to do i would appreciate it.

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  #2  
Old 09-30-2009, 05:43 AM
neilsend
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Hi > If I were you go and get a second opinion from another neurosurgeon ????I have had hydrocephalus for about 10 yrs now and I just got a shunt in July 2008!! I have been getting severe headaches for about 4 months now, that is why I join the forum!!!! I have had my meds changed to 50mg amitriptyline,
it seems to be working!! I am feeling a bit better> Take Care-Donna N.
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