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Old 06-22-2008, 01:54 AM
EmmysParents
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Default Bowel Strategies

Our daughter is 8 years old and has spina bifida and hydrocephalus.* She has a VP shunt and is high functioning with an S1 lesion.* She self-caths 5 times a day.

Our biggest challenge is bowel management.* She takes 10 ml/day of Miralax in hot chocolate and is given a Dulcolax suppository every other day.* She has good eating habits with plenty of fruit and vegetable.* Despite this routine, she regularly stains her pad and has accidents.* X-rays have shown that, while her stool is soft, her bowels never seem to empty.* We have had little success with enemas.

We're seriously considering a cecostomy (although she's not too crazy about the idea).* Do we have other options?* What are the pros and cons of the cecostomy?

We'd appreciate hearing from those with similar challenges or advice.

*

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Old 06-24-2008, 05:25 PM
Skyebandit Skyebandit is offline
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Default Bowel Strategies

Hi

Other option I know of is the Malone where they use part of the appendix to create a conduit.* Down-side of this is that it involves major surgery, not easily "reversed"

Pros of cecostomy (that I can think of):

Not major surgery

Easily removed

Appendix not used so it is free if required (mitronoff)

*

Cons of cecostomy:

The placement of the trap door is variable ie could be high or low.* This isn't known until child undergoes procedure.

Trap door isn't flush to the body so it can catch on things

Administering of enema can be uncomfortable/painful

Need to replace the tube/trap door*atleast every year

I would recommend this site:

<a target="_blank" href= "http://www.cecostomy.com">www.cecostomy.com</A>

My daughter has had the cecostomy/Chait Trap Door for almost 6 years now.

*

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