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  #1  
Old 07-16-2014, 04:56 PM
elmarianexx elmarianexx is offline
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Default Your experience with Spina Bifida.

When were you diagnosed with spina bifida? How did it change your life? How do you try to cure it?
Share your experience with spina bifida here at this topic.
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Old 09-06-2014, 09:39 AM
elmarianexx elmarianexx is offline
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I am going to boost this topic because it didn't get any responds and I think that people would like to share their personal experiences with Spina Bifida isn't that right?
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Old 09-08-2014, 09:34 AM
GemmaRowlands GemmaRowlands is offline
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I don't have it myself - I am involved in this forum because I have a close friend with the condition and I want to help her as much as possible. She is actually coping remarkably well, and is always commenting on how things could have been so much worse for her. In fact, she is turning it into a positive thing in her life, because she has now devoted a lot of her time to campaigning for pregnant women to be given free folic acid supplements from their doctor, as those with a low income might not be able to purchase them, and the statistics show that the risk of SB is highly reduced if the mother takes these during pregnancy. So she has turned her life around for the better, and she always says that she is thankful that she has something to fight for, because she sees so many "healthy" people who just don't have that same drive for life as she does.
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