Great idea, I am a friend to several who suffer from this and I am trying to find out as much as possible about this. Perhaps even a beginner's forum would be of help too, a place where questions by the rookies could be addressed.
That is also a amazing idea firelily99 a beginner's forum would help people to understand the symptoms of hydrocephalus. We can definitely have these new people really interact with the other members and have an open mind about this.