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Old 04-03-2012, 12:12 AM
colleen
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Default 12 yr old daughter with L4, L5 spina bifida

I have a 12 yr old daughter with L4, L5 Spina bifida. I found out when I was 31 weeks pregnant that I was having a girl with spina bifida. I had no clue what it was , if I didn't want to know the sex of my child I would of never know till she came out that she had spina bifida.
She has been through back surgery, hip surgery, right foot tendon clip, left foot tendon clip and a left foot bilateral straightening.
A year ago we learned she has to catheter herself, that was the worst year I have ever experienced.
Payton walks with AFO's and a walker. She has had pressure ulcers on both feet.
Every day is a learning experience for both me and my husband.
Payton is a very strong minded child and wants to be like the other kids.
I just want to talk to other moms and dads that are experiencing or experienced what I am going through.
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