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Search: Posts Made By: infolady
Forum: Connect with others 06-19-2017, 12:56 PM
Replies: 1
Views: 1,683
Posted By infolady
Questions for Post surgery

Hi Tenai,
Welcome to the forum. Here are some questions you could ask:
Who can I contact if I suspect a problem or have questions?
Will I need physiotherapy?
When can I resume normal activities?...
Forum: Connect with others 10-05-2015, 06:21 PM
Replies: 0
Views: 2,598
Posted By infolady
Driving & Spina Bifida

Thinking about getting your driver's license and wonder what that entails. Talk to your occupational therapist about a driving assessment and visit Driveable's websitre http://www.driveable.com/ for...
Forum: General Discussions 09-11-2014, 08:00 PM
Replies: 24
Views: 16,354
Posted By infolady
Folic acid and neural tube defects

Folic acid can reduce the risk of neural tube defect (NTDs) such as spina bifida and anencephaly by as much as 70%. NTDs happen in the first four weeks after conception, therefore it is recommended...
Forum: Connect with others 08-27-2014, 06:14 PM
Replies: 0
Views: 1,732
Posted By infolady
Is Your Child Starting School This Fall?

Is your child starting school this fall? The Association has variety of resources for you to navigate the school system and for education professionals and children to learn about the conditions. ...
Forum: Connect with others 08-27-2014, 06:13 PM
Replies: 0
Views: 3,808
Posted By infolady
Starting School This Fall?

Is your child starting school this fall? The Association has variety of resources for you to navigate the school system and for education professionals and children to learn about the conditions. ...
Forum: Comments & Suggestions 08-13-2014, 01:39 PM
Replies: 8
Views: 8,589
Posted By infolady
Bigger font size

Thank you for pointing out that enlarging the font size would improve the use of this forum. We will look into making these changes.
Forum: Comments & Suggestions 08-13-2014, 01:36 PM
Replies: 13
Views: 9,896
Posted By infolady
Additional categories to forum

Thank you for your comments and suggestions about adding more categories to this forum. We appreciate your ideas.

This forum's main objective is to connect parents, families and adults in the...
Forum: Comments & Suggestions 08-13-2014, 01:22 PM
Replies: 5
Views: 5,286
Posted By infolady
Chatbox & Skype

Thank you for providing ideas of other options to link members of this discussion forum. We will take your suggestions under consideration.
Forum: Comments & Suggestions 08-13-2014, 01:19 PM
Replies: 3
Views: 4,678
Posted By infolady
Videos on spina bifida

Thank you for your suggestion. Videos of individuals with spina bifida and/or hydrocephalus sharing their lives are often posted on the home page of our website and on our Facebook page.
Forum: General Discussions 04-03-2014, 01:31 PM
Replies: 9
Views: 7,778
Posted By infolady
When to take folic acid

If you are planning a pregnancy, it is recommended that a woman take at least 0.4 mg of folic acid daily for at least 3 months prior to conception and during the first trimester. For more details,...
Forum: Comments & Suggestions 04-03-2014, 01:25 PM
Replies: 9
Views: 14,113
Posted By infolady
SB&H does have two forums through Ability Online...

SB&H does have two forums through Ability Online for youth with spina bifida and hydrocephalus. These are monitored rooms. Visit our youth section for more details.
Forum: Comments & Suggestions 04-16-2012, 03:45 PM
Replies: 9
Views: 8,561
Posted By infolady

Thank you for your input. We will take your comments into consideration.

Shauna Beaudoin
SB&H Information & Services Coordinator
Forum: Connect with others 07-11-2011, 01:29 PM
Replies: 3
Views: 3,512
Posted By infolady
Holdin' Out for a Hero Blog

Laura Tellado has started a daily blog which chronicles her life living as an individual with spina bifida. This is also her way of raising awareness of spina bifida. Check out her blog at...
Forum: Comments & Suggestions 02-06-2011, 07:04 PM
Replies: 4
Views: 6,844
Posted By infolady

We are working on trying to control the spam and bad postings, however, most of these are computer generated through software programs and they are difficult to combat. We realize sifting through...
Forum: Connect with others 05-26-2010, 03:00 PM
Replies: 17
Views: 44,026
Posted By infolady
shunt malfunction signs

Shunts can stop working or malfunction. A shunt that stops working causes the same symptoms as untreated hydrocephalus. The consequences of shunt malfunction vary greatly. In some cases, the shunt...
Forum: Connect with others 03-17-2010, 02:39 PM
Replies: 6
Views: 6,184
Posted By infolady
latex allergy

Hi Amanada,

A latex allergy for a person with sb can be a serious condition if they are exposed to rubber products through repeated surgeries, diagnostic tests and examinations and bladder and...
Forum: Connect with others 03-10-2010, 08:25 PM
Replies: 9
Views: 23,201
Posted By infolady
Hello, Hydrocephalus can be detected in...


Hydrocephalus can be detected in full-term infants by the size of the head and fontanel for fullness, eyes, reflexes and startle response, developmental progress such as smiling, crawling,...
Forum: Connect with others 11-19-2009, 07:20 PM
Replies: 11
Views: 9,412
Posted By infolady
Summer Camps

Most cities have an integrated program through their parks and recreation department and you would need to contact them directly to find out costs.

Easter Seal Society Summer Camps are open to...
Forum: Comments & Suggestions 11-02-2009, 06:58 PM
Replies: 15
Views: 13,321
Posted By infolady
employment forum and logging in

Your suggestion for an employment forum is an interesting idea and we will take it into consideration. As to logging in to use the forum-this is a security issue to try and keep out spammers and...
Forum: Connect with others 09-01-2009, 02:25 PM
Replies: 7
Views: 7,105
Posted By infolady
SB detected later in life

Occulta is often undetected at birth and is known as the hidden form of spina bifida. It is a mild form of spina bifida and for many of those affectedand sbo does not cause any health issues. ...
Forum: Connect with others 08-17-2009, 04:09 PM
Replies: 2
Views: 4,793
Posted By infolady
Teens With Spina Bifida

The Association can certainly help with your transition into adulthood. We have resources available to assist you on this journey. You can also contact us directly at 1-800-387-1575 for support...
Forum: Connect with others 07-14-2009, 01:31 PM
Replies: 1
Views: 4,843
Posted By infolady

If you are having difficulty connecting with someone in your situation on the forum, a suggestion would be to ask your neurosurgeon if he/she knows of a child with a similar condition to Emily. ...
Forum: Connect with others 06-24-2009, 02:00 PM
Replies: 20
Views: 16,835
Posted By infolady

There are a variety of exercise videos on the market for individuals with limited mobility and flexibility. The Association has a variety of videos that can be borrowed from our Resource Centre...
Forum: Connect with others 08-01-2003, 06:11 PM
Replies: 1
Views: 4,290
Posted By infolady

Try contacting the Spina Bifida & Hydrocephalus Association of New Brunswick located in Moncton at 506-857-9947 regarding your request.*


Forum: Connect with others 08-01-2003, 05:58 PM
Replies: 5
Views: 4,618
Posted By infolady

SBHAO*does as well.* We have a package of information on occulta and secondary conditions like tethered cord that we provide initially.* We also assist individuals in contacting medical...
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