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Search: Posts Made By: Skyebandit
Forum: Connect with others 01-28-2010, 04:54 PM
Replies: 7
Views: 6,883
Posted By Skyebandit
Sorry I don't have any experience with McMaster. ...

Sorry I don't have any experience with McMaster. I live in Ottawa.

My daughter is totally incontinent. She did not achieve self-cathertization until she was about 11 years old. It took a while...
Forum: Connect with others 06-24-2008, 05:25 PM
Replies: 1
Views: 4,763
Posted By Skyebandit
Bowel Strategies

Hi

Other option I know of is the Malone where they use part of the appendix to create a conduit.* Down-side of this is that it involves major surgery, not easily "reversed"

Pros of...
Forum: Connect with others 02-26-2008, 05:44 PM
Replies: 11
Views: 10,514
Posted By Skyebandit
Bowel &/or Bladder Program & routines

Hi Vicky

My daughter has a c-tube, which we had put in at Sick Kids in Toronto when she was 6.* While she isn't happy with it, it has still given her independance and almost free of bm...
Forum: Connect with others 02-01-2008, 08:45 PM
Replies: 11
Views: 10,514
Posted By Skyebandit
Bowel &/or Bladder Program & routines

Hi Tessa

It took a long time for my daughter to feel comfortable cathing herself.** She was not able to do this until she turned 10.* Before that, she felt it was yuky and much prefered...
Forum: Connect with others 02-01-2008, 08:38 PM
Replies: 2
Views: 4,543
Posted By Skyebandit
SB L5-S1

My daughter doesn't have hydrocephalus, but she does have bladder and bowel issues and walks, S1-S4.

*

Pam

Forum: Connect with others 11-20-2007, 05:59 PM
Replies: 1
Views: 5,092
Posted By Skyebandit
Questions to ask?

My daughter who is 11 had the cecostomy to control her bowels.* She has just started doing her irrigations herself.* The procedure, along with intermittent cathertization (which she does herself)...
Forum: Connect with others 07-09-2007, 03:04 PM
Replies: 11
Views: 10,514
Posted By Skyebandit
Bowel &/or Bladder Program & routines

Hi Sandra (and Thomas)

My 11 year old daughter has the c-tube and it has made the world of difference concerning her bowel control.* I would highly recommend researching this option - we...
Forum: Connect with others 03-17-2005, 04:36 PM
Replies: 3
Views: 5,597
Posted By Skyebandit
tethered cord

Hi "Wood"

My daughter has lipomyelomeningocele (a form of SBO) and tethered cord.* She's 9 (today).* She has had two untetherings so far.

She also is incontinent so we cath 4x day,...
Forum: Connect with others 10-06-2004, 04:37 PM
Replies: 4
Views: 4,444
Posted By Skyebandit
incontinence

Hi

Are you saying that your son is not on ditropan any longer?* If not, then what medication is he on.

My daughter needs to be on medication to control her bladder spasms as well as...
Forum: Connect with others 09-28-2004, 04:56 PM
Replies: 4
Views: 4,444
Posted By Skyebandit
incontinence

Hi Sherry,

My daughter also has the Chait trap door and is on intermittent cathertization.* She's 8 years old and was born with lipomyelomeningocele.

What does your urologist say?*...
Forum: Connect with others 12-02-2003, 03:04 PM
Replies: 10
Views: 13,325
Posted By Skyebandit
Support

My daughter's incontinence is solved by

*

1) Intermittent cathertization along with medication (oxybutynin)

2) Cecostomy with Chait Trap Door, place at Sick Kids in Toronto in...
Forum: Connect with others 11-12-2003, 08:01 PM
Replies: 17
Views: 14,448
Posted By Skyebandit
Please help!

Bill

My daughter too had the cecostomy.* We traveled from Ottawa to Toronto to have the c-tube inserted then back again a few weeks later for the Trap Door.

I have found Helen...
Forum: Connect with others 11-12-2003, 07:56 PM
Replies: 1
Views: 3,084
Posted By Skyebandit
pregnacy & spina bifita HELP!!!

Hi Jennifer

While I can't help with respect to my experience (my daughter's condition was detected after birth and she has closed form of spina bifida) and can say, from talking to other...
Forum: Connect with others 10-30-2003, 07:24 PM
Replies: 3
Views: 3,817
Posted By Skyebandit
Support & Information Please

What sort of information are you looking for?* I can hook you up with a support group of adults who have OSD and are dealing with tethered cord issues.

Pam

*

Forum: Connect with others 10-30-2003, 07:15 PM
Replies: 0
Views: 3,202
Posted By Skyebandit
Lipomyelomeningocele Family Support Net

LFSN is a not-for-profit organization run strictly by parents of children born with OSD and tethered cord.

I am desperately trying to get a new webhost so I can update the information on...
Forum: Connect with others 06-13-2003, 07:13 PM
Replies: 2
Views: 4,479
Posted By Skyebandit
Lipomyelomeningocele

Just new here.* My daughter has this form of OSD.* We live in Ottawa.* Even though it is lumped within the term 'occult', her condition is far from hidden.* She was born with a fatty mass on her...
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