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Search: Posts Made By: minniemay
Forum: Connect with others 09-14-2004, 02:33 PM
Replies: 7
Views: 8,893
Posted By minniemay
How long did your V-A shunt function?

Hi Cheryl,

I have not posted in a very long time because I*spent most of the summer*in the hospital. My last shunt revision took place on September 10th, number 24 within the past eighteen...
Forum: Connect with others 06-21-2004, 04:16 PM
Replies: 7
Views: 8,893
Posted By minniemay
How long did your V-A shunt function?

Dear Lorena,

A V-A shunt goes from the head to the heart and a V-P shunt goes from the head to the abdomen. I had a V-P shunt for nineteen years, until December 22nd, 2003. I would like to...
Forum: Connect with others 04-30-2004, 11:53 PM
Replies: 2
Views: 3,908
Posted By minniemay
There’s any hope?

I understand how you feel because I have had twenty-one surgeries in the past thirteen months. This includes nineteen shunt revisions and two other surgeries were done to externalize my shunt. I...
Forum: Connect with others 04-27-2004, 03:13 AM
Replies: 1
Views: 3,417
Posted By minniemay
many shunt revisions due to siphoning

Dear Laura,

Well, here is an update. I had five other revisions since I last posted the message. I had an ICP monitor put in before the last one: it showed negative pressures in vertical...
Forum: Connect with others 03-28-2004, 02:59 PM
Replies: 1
Views: 3,206
Posted By minniemay
Sixteen shunt revisions in one year

Hello everyone, * I have not been around the past two weeks because I had shunt revision number fifteen March 18th and number sixteen (between 2003 and 2004 only) March 25th. * I was admitted on...
Forum: Connect with others 03-16-2004, 04:31 PM
Replies: 2
Views: 3,371
Posted By minniemay
food for thought

Hi,

I have had hydrocephalus since the age of four months. Since March 2003, I have had many revisions. The neurosurgeon thinks that I have a shunt problem and a migraine (not a...
Forum: Connect with others 02-14-2004, 03:20 PM
Replies: 1
Views: 3,620
Posted By minniemay
seizure - migraines?

Good day Shyra,

I have had hydrocephalus since the age of four months. Today, I am nineteen years old and have had 15 shunt revisions (twelve in the last ten months). However, I have never...
Forum: Connect with others 01-16-2004, 01:32 AM
Replies: 7
Views: 8,893
Posted By minniemay
How long did your V-A shunt function?

Good day, * I have had thirteen surgeries this year: 11 shunt revisions and twice the distal catheter was externalized.*As of the age of four months and a half, until*December 22nd, 2003, I had a V-P...
Forum: Connect with others 11-22-2003, 04:24 PM
Replies: 3
Views: 3,692
Posted By minniemay
Headaches after 11th surgery this year

Good day to everyone,

I had surgery number eleven, of this year, on November 13th. Since the revision that took place in July, the pattern is always the same. I have no headache two to...
Forum: Connect with others 11-22-2003, 03:47 PM
Replies: 1
Views: 3,580
Posted By minniemay
Is this something to worry about?

Dear Tamara,

I am glad that your daughter has no more headaches. For how long*had she been suffering from headaches?

I have had eleven surgeries this year and I still have a headache...
Forum: Connect with others 11-22-2003, 02:58 AM
Replies: 1
Views: 4,471
Posted By minniemay
Lumbar Spinal Fluid Drainage Trial NPH

Hello,

I would like to know what kind of headache you have. When you lie down, do you feel any improvement or*is your headache constant. I have congenital hydrocephalus and have been...
Forum: Connect with others 11-08-2003, 08:22 PM
Replies: 0
Views: 4,017
Posted By minniemay
Air bubble in the brain

To all readers.

I had my shunt revision number nine*of this year on November 3rd. In all, I had ten surgeries with the externalization of the shunt.

At the presnt time, I still...
Forum: Connect with others 11-08-2003, 06:07 PM
Replies: 4
Views: 5,657
Posted By minniemay
Troubleshooting (on me)

Hello everyone,

I have had a shunt since I am four and a half months old. Until March of this year, I led a normal life. I skiied, played golf, swam, drove a car, went to school and...
Forum: Connect with others 09-27-2003, 02:08 AM
Replies: 1
Views: 7,685
Posted By minniemay
Orbis-Sigma valve

To all readers,

I had my last shunt revision on September 22nd, 2003. The neurosurgeon inserted an Orbis-Sigma valve, one that is flow regulated. This means that the pressure varies,...
Forum: Connect with others 08-28-2003, 02:14 AM
Replies: 1
Views: 4,108
Posted By minniemay
Headaches & Tummy aches sometimes!

Dear Tamara,

I have had six shunt revisions between March and August of this year. I started having headaches once in a while in the fall, then during the winter they became frequent. By...
Forum: Connect with others 08-24-2003, 03:53 PM
Replies: 0
Views: 3,323
Posted By minniemay
Antisyphon devices

To all readers:

I have had six shunt revisions between March and August of this year. Besides the headaches still being a major symptom, my right arm and shoulder are extremely sore....
Forum: Connect with others 08-06-2003, 04:14 PM
Replies: 2
Views: 3,675
Posted By minniemay
is this normal for hydrocephalus

Dear Taneisha,

Symptoms may vary between children and adults who suffer from hydrocephalus. However, previous to the past two surgeries which I have had,*nothing abnormal showed up on*the...
Forum: Connect with others 08-01-2003, 07:31 PM
Replies: 9
Views: 9,318
Posted By minniemay
Parent-coping day to day

Good day Taneisha,

First of all, thank you for replying to my message. I*have*physical weaknesses*on my right side: my right leg is crooked,*my coordination skills*are poor and I have very...
Forum: Connect with others 07-31-2003, 08:34 PM
Replies: 1
Views: 4,081
Posted By minniemay
Multiple shunt revisions

Hello,

I am a 19-year-old girl who*was diagnosed with hydrocephalus at the*age of four and a half months. The neurosurgeon found a cyst in my brain which cannot be removed. Until March...
Forum: Connect with others 07-31-2003, 07:24 PM
Replies: 4
Views: 6,738
Posted By minniemay
Hydrocephalus

Good day Pamela,

I am a 19-year old girl who was diagnosed with hydrocehalus at four and a half months old. Just like your son, I have a VP shunt. Until March 2003, I had three revisions....
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