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Search: Posts Made By: saffsmom
Forum: Connect with others 01-26-2010, 11:45 PM
Replies: 3
Views: 5,548
Posted By saffsmom
you need to see your family doctor ASAP. if...

you need to see your family doctor ASAP.
if you do not have a family doctor go to a walk in clinic.
you do not say where you live....depending upon your location you could also contact your...
Forum: Connect with others 01-15-2010, 03:53 PM
Replies: 7
Views: 5,816
Posted By saffsmom
bowel and bladder management

my daughter saffi is 3 1/2 years old. her sb is L4/L5 ish. we are followed by the sb clinic at mcmaster.
we have a clinic appointment in march at which i really want to push the subject of starting...
Forum: Connect with others 03-18-2009, 11:48 PM
Replies: 11
Views: 9,171
Posted By saffsmom
Pregnancy question

i would wait just to be safe as there seems to be some evidence of a link between smoking status and increased risk of NTD.<br> <br> sonia<br> mom to saffron (not quite 3 yrs old, SB L4ish) and baby...
Forum: Connect with others 08-27-2008, 04:43 PM
Replies: 1
Views: 3,866
Posted By saffsmom
Any thoughts?

we have used a combination of lansoyl (a mineral oil jelly) and senakot (a natural stimulant laxative) for our daughter since she was about 10 months old. it has worked well for us so far.<br> while...
Forum: Connect with others 07-30-2008, 01:46 AM
Replies: 1
Views: 4,085
Posted By saffsmom
new to this

most likely he will have surgery to install a shunt (a drain tube with a valve) that will go from his head under his skin and drain into his abdomen. hydro is casued by a buildup of fluid in the...
Forum: Connect with others 07-14-2008, 02:24 PM
Replies: 5
Views: 5,637
Posted By saffsmom
Prenatal Diagnosis

hello,<br> to be honest it's very hard for the doctors to give really accurate info before your baby is born. even after your detailed ultrasound they will still be giving you "maybe's". not what you...
Forum: Connect with others 06-02-2008, 06:42 PM
Replies: 5
Views: 7,161
Posted By saffsmom
Need some advice please

hi,<br> <br> it is impossible to know what his issue is unless he tells you, but if i had to take a guess i would say that it is probably one of two things.<br> <br> because spina bifida affects all...
Forum: Connect with others 05-09-2008, 01:12 PM
Replies: 11
Views: 9,388
Posted By saffsmom
SB Summer Camps?

there are easter seals camps for kids with a kinds of disablities.check out the easter seals website.<br> i've not heard of a strictly SB camp in canada, although there is one in Illinois.
Forum: Connect with others 05-08-2008, 01:42 PM
Replies: 0
Views: 2,836
Posted By saffsmom

my daughter saffi is being casted for RGO's next week. <br> anybody else using RGO's? have any advice and or warnings for me?<br> i'm excited and terrified about seeing her walk.
Forum: Connect with others 03-06-2008, 05:28 PM
Replies: 11
Views: 9,202
Posted By saffsmom
Bowel &/or Bladder Program & routines

HI,<br> for those of you struggling with with bowel issues i suggest you take a look at the work being done by Dr Levitt at the Pediatric Colorectal Clinic at Cincinatti Childrens Hospital in...
Forum: Connect with others 02-29-2008, 05:54 PM
Replies: 3
Views: 5,432
Posted By saffsmom
new friends?

my name is sonia and i am mom to saffi ( 20 months, SB L4ish, no shunt, crawling, standing frame, part time wheeler) . we live in the niagara area and i wonder if there are any other young SB kiddos...
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