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Search: Posts Made By: firelily99
Forum: Connect with others 07-25-2014, 06:41 PM
Replies: 6
Views: 10,211
Posted By firelily99
I can really see how that can be a problem,...

I can really see how that can be a problem, especially for the children. I can't believe that they have not found a substance that could be used in gloves and be latex free. More and more people...
Forum: Connect with others 07-25-2014, 06:38 PM
Replies: 9
Views: 9,321
Posted By firelily99
I had never heard of the artificial sphincter...

I had never heard of the artificial sphincter either and it is amazing the advances that medical technology has made. I am definitely going to do some further reading on the internet to see what...
Forum: Connect with others 07-25-2014, 06:35 PM
Replies: 9
Views: 7,539
Posted By firelily99
Thanks for posting that, very powerful story. ...

Thanks for posting that, very powerful story. Your friend clearly is courageous in her willingness to keep going despite the difficulties with SB. Thanks for sharing your story about you friend. ...
Forum: Connect with others 07-25-2014, 06:32 PM
Replies: 11
Views: 11,112
Posted By firelily99
If waiting for a few more months will reduce the...

If waiting for a few more months will reduce the risk to the baby then by all means do it. Congrats of quitting smoking, that will seriously improve the quality of your life as well as those around...
Forum: Connect with others 07-25-2014, 06:29 PM
Replies: 6
Views: 5,029
Posted By firelily99
It very well could be related to genetics but it...

It very well could be related to genetics but it could also have the environmental component. Hard to say at this point but I am sure that they are working hard at trying to find the cause.
Forum: Connect with others 07-25-2014, 06:27 PM
Replies: 11
Views: 12,353
Posted By firelily99
I can't imagine why she would have issues with...

I can't imagine why she would have issues with immigrating to Canada with SB. Its not a communicable disease which would be the main criteria. I think you will do much better up in Canada in terms...
Forum: Comments & Suggestions 07-23-2014, 07:13 PM
Replies: 11
Views: 13,401
Posted By firelily99
Great idea, I am a friend to several who suffer...

Great idea, I am a friend to several who suffer from this and I am trying to find out as much as possible about this. Perhaps even a beginner's forum would be of help too, a place where questions by...
Forum: Connect with others 07-23-2014, 07:10 PM
Replies: 6
Views: 5,029
Posted By firelily99
It could be related to many factors just any...

It could be related to many factors just any number of other diseases still have risk factors or causes that are still unknown. Could it be environmental or related to chemicals in the home or the...
Forum: Connect with others 07-23-2014, 07:07 PM
Replies: 2
Views: 4,151
Posted By firelily99
What would other symptoms be with SB, things that...

What would other symptoms be with SB, things that might not normally occur. I have been looking for information due to a friend's being born with it and now another friend has a diagnosis. Any and...
Forum: General Discussions 07-23-2014, 07:04 PM
Replies: 17
Views: 14,934
Posted By firelily99
Given the number of foods - vegetables that do...

Given the number of foods - vegetables that do contain folic acid it seems that if you eat enough of those you should be doing well with it. I eat most of them and I have to say that I feel so much...
Forum: General Discussions 07-23-2014, 07:00 PM
Replies: 24
Views: 20,431
Posted By firelily99
I am new to the SB community, trying to find out...

I am new to the SB community, trying to find out as much as I can because friend's daughter has it. What is the benefit of folic acid on SB? Does it improve the symptoms in a significant way?
Forum: Connect with others 07-22-2014, 10:33 PM
Replies: 13
Views: 12,057
Posted By firelily99
What are the percentages of an adult being...

What are the percentages of an adult being diagnosed with SB? If there are out ward physical signs it seems to me that someone might have questioned them?
Forum: Connect with others 07-22-2014, 10:27 PM
Replies: 20
Views: 19,701
Posted By firelily99
I am trying to accumulate information for a...

I am trying to accumulate information for a friend's daughter concerning exercise. Yoga would be great for her but I don't think that it would interest her. Any suggestions?
Forum: Connect with others 07-22-2014, 10:24 PM
Replies: 10
Views: 9,649
Posted By firelily99
I am new to learning about SB and did not know...

I am new to learning about SB and did not know that osteoporosis impacted those with SB. Is their an age range for this? My friend's daughter will be six in a few months and I was wondering if she...
Forum: Connect with others 07-22-2014, 10:22 PM
Replies: 13
Views: 12,057
Posted By firelily99
I was unaware that SB could be diagnosed in...

I was unaware that SB could be diagnosed in adulthood, very surprising to hear this. Mayo Clinic is a fountain of information about many conditions, I know that I have gotten a lot of good facts from...
Forum: General Discussions 07-22-2014, 10:18 PM
Replies: 10
Views: 11,473
Posted By firelily99
I came to ths site because a good friend of mine...

I came to ths site because a good friend of mine has a child with SB. In order to help them I felt that I needed to know more about this condition. Glad to have found this site.
Forum: Connect with others 07-22-2014, 10:15 PM
Replies: 3
Views: 4,803
Posted By firelily99
Hello to all...

Hello to everyone from Connecticut! A dear friend of mine has a child with Spina Bifida and I am trying to learn as much as I can about it. I found this site by accident and am really glad tthat I...
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