Spirit Wheel Walk Run (SWWR) events were held in June celebrating Spina Bifida & Hydrocephalus Awareness Month!
These grassroots community walks continue to thrive. There were 15 walks in June with proceeds so far totaling over $40,000 for SB&H programs, services and support! There are also 3 additional SWWRs taking place in July and August. The events generated quite a bit of attention from the public and local media, raising much needed awareness of spina bifida and hydrocephalus and elevating the profile of the conditions across Ontario. Be sure to read some of the media articles below and view the great photos!
SWWRs have become a tradition in many communities and organizers have done an incredible job making these events a day to look forward to year after year. There were also 3 first time SWWRs in 2013. “Andrew & Ryder’s Journey”, a new SWWR in Hamilton raised over $13,000, a phenomenal amount, and the most ever by a single SWWR in the 6 year history of the event!
“Ask Me” T-shirts worn by participants were a big hit and encouraged people to ask questions about the conditions, and everyone who registered also received a silicone wristband imprinted with the words ‘Spina Bifida & Hydrocephalus”.
“The walk was started to create awareness about this condition. And if we could reach a couple of new people every year that live with this that would be great. We want people to know that we’re here, that we’re a support system. We don’t want anyone to feel like they have to go through this alone like we did. Were still living this life right now but we’ve been through everything. Now we want to pay if forward.”
Troy Chandler-on “Troy’s Trail”, a SWWR organized by Troy and his wife Annette in Sault Ste. Marie.
“Emily is very excited this year. She loves seeing her family and friends come out and support her.” - Janice Beauchamp- Mom of 9 year old Emily and organizer of “Emily’s Walk” SWWR in Amherstburg.
Thank you to O.O.S. Medical for their ongoing sponsorship of the event.
“Community” is the strength of each and every SWWR, no matter how large or how small they may be. It’s the dedication and passion of the people involved that makes this grassroots campaign a roaring success.
SB&H is grateful to everyone who participated and to all the SWWR volunteers and donors.