Organize an Event in Your Community

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Hosting your own fundraising or awareness event can be a unique and meaningful way to make a difference and benefit others. If you’re looking for a great way to support a cause dedicated to improving the quality of life of people living with spina bifida and/or hydrocephalus why not organize a third party event. This is an event organized by you, however big or small, where proceeds are donated to SB&H.

Fundraising is an important part of SB&H activities that sustains programs, contributes to research and helps those who need us.

Here are some examples of successful third party events:

  • Bake Sales
  • Barbeques
  • Bingo Nights
  • Bowling Tournaments
  • Car Washes
  • Competitions (billiards, darts, scrabble, Texas Hold’em)
  • Dinner/Dances
  • Endurance Challenges (bike-a-thon, walk-a-thon, spin-a-thon)
  • Garage Sales
  • Golf Tournaments
  • Fashion Shows
  • School Fundraisers
  • Street Fairs & Carnival Days
  • Used Book Sales
  • Wine & Cheese Parties

Another great way to make a difference is to include SB&H in an event you are already planning. Instead of a gift encourage guests to bring a donation to SB&H. Some celebrations you might consider doing this for include:

  • Birthdays
  • Graduations
  • Weddings
  • Anniversaries
  • Retirement Parties

Planning an Event?

Are you planning a community picnic or family reunion this summer? Consider asking everyone to bring a $10 donation.

If you are interested in learning more about how to plan a successful event, please contact us to receive a copy of our Third Party Events Guide. It contains many useful suggestions and important information on how to get started and create an event that will be fun and rewarding.

Be Creative! There are no limits to what you can do within your community to help. One community raised over $1,000 by shaving their heads for SB&H!!!

For help getting started email or call 800-387-1575.



If you are a member of a community group, union or service club, SB&H would be happy to discuss possible fundraising partnerships. Contact for more information.

Community Service Walk A Success!

For the second year in a row, the Rotary Club of Burlington North supported SB&H through their annual Rotary Community Service Walk which raised $12,000 for SB&H programs and services.

Energetic participants gathered at the Burlington Mall, Sunday March 28th, for a 1km indoor walk where there was face painting, fire truck tours, crafts and refreshments. Leading the walk was Jordan Sarraf, Faith Postma and Burlington Mayor, Cam Jackson. SB&H members who live in the area came out to show their support and raise awareness for spina bifida and hydrocephalus.

Thank you to all who participated in this fun event!

A special Thank You goes to Brian Gould, Rotary member, who organized the event and motivated Club members to raise thousands of dollars for the Association. SB&H would also like to extend our heartfelt appreciation to SB&H members Paula Sarraf and Roger Di Battista for their commitment to making this event a wonderful success!



 Karen Howard’s Story

“It has been a long and sometimes difficult journey from when I was diagnosed with adult onset Normal Pressure Hydrocephalus (NPH) to the present time. This is probably what makes my achievement very special to me. Also, the fact that I could complete the walk and raise money for hydrocephalus makes it more worthwhile.” Karen Howard

Before Karen was diagnosed, she lost the ability to speak or walk. After receiving treatment for hydrocephalus and spending years in therapy learning to regain these basic skills, she decided she needed to be more active. As a graduate of physical education, sports had always been very important to her. So, with the help of her friends, she trained for the half marathon. Karen knew that she could not run the distance but if she took her time, she could walk it.

“If the money I raised means that I can make a difference in one person’s life then it was worthwhile. By helping the Association in their campaign to raise awareness of NPH, a condition that affects adults, it is my hope that more people will receive accurate, early diagnosis and treatment.”


Renee's Run

It was a first for Renée Farrell, a young woman with spina bifida. Renée ran 21.1 difficult kilometers in the Toronto Half Marathon and successfully raised $1,800 for SB&H. Congratulations and thank you, Renée!!




Running for Pearce

Born with spina bifida, Pearce Arani will never be fleetest of foot. That is why his mother runs for him. Beth Horodyski dedicated each of the 21.1 km she ran at the Labour Day Oakville Half Marathon to her four-year-old son, as she has done every time she participated in a race. A group of more than 10 runners called “Pearce’s Pacers for Spina Bifida” participated in the race and raised close to $2,500 for SB&H.

Building awareness of spina bifida and hydrocephalus is a cornerstone of our mission. We would like to thank and acknowledge the tremendous spirit of the many members and friends who have given of their time and raised funds for SB&H programs. Their efforts boost awareness of these conditions and help improve the quality of life of everyone living with spina bifida and/or hydrocephalus.



Ride for Hope

Imagine a 20-member team of O.P.P. officers riding 800 pound Harley Davidson Police Special motorcycles. This dedicated group is called the Golden Helmets Precisions Motorcycle Team.

They put on the most amazing shows of daring and rode with great precision. Proceeds from the sales of clothing and pins at their exhibitions are donated to a variety of children’s charities. In 2009, we were very grateful to receive $2,000 from the Golden Helmets. Team member Rick Foley, has a 6-year old stepson, Alec, who has spina bifida and hydrocephalus.