Who We Are

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For 40 years, the Spina Bifida & Hydrocephalus Association of Ontario (SB&H), has been committed to making a positive difference in the lives of individuals with spina bifida and/or hydrocephalus.

SB&H was incorporated as a registered charity in 1973 and is governed by a volunteer board of directors. The Association supports those with spina bifida and/or hydrocephalus and their families with the challenges brought on by these serious, disabling conditions.

SB&H has grown to provide a comprehensive and essential range of services for parents, families, youth and adults with sb/h. Our programs are rooted in the principles of self-help and personal support. We also serve the broader community which includes: parents who receive pre-natal diagnosis of sb/h; extended family members; all women of child-bearing age about the benefits of folic acid in the prevention of neural tube defects; and a wide spectrum of professionals in the social services, medical, health and education fields. SB&H is the only organization in Ontario addressing the particular needs of our members.

SB&H receives no government funding and generates one hundred percent of its operating revenue through a myriad of fundraising efforts. The strength of the Association is a vital network of dedicated volunteers.

For further information please contact SB&H at provincial@sbhao.on.ca.

"In the beginning, SB&H’s founding families wanted a link with parents at the hospital, because they knew what little information they had been given when their children were born. Twenty-five years later, everyone remembers the incredible bonds that were forged..." By Marni Andrews   Read more...